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新慢性病的人类学研究:在医学创新作为长期治疗手段的前景下的患病经历

Anthropology of new chronicities: illness experiences under the promise of medical innovation as long-term treatment.

作者信息

Greco Cinzia, Graber Nils

机构信息

Wellcome Trust Research Fellow, Centre for the History of Science, Technology and Medicine (CHSTM), The University of Manchester, Manchester, UK.

STS Lab, University of Lausanne Institute of Social Sciences, Lausanne, Switzerland.

出版信息

Anthropol Med. 2022 Mar;29(1):1-13. doi: 10.1080/13648470.2022.2041550. Epub 2022 Mar 25.

Abstract

In the introduction to the special issue, Greco and Graber discuss the concept of chronicity and the ways it is used in the contributions to the special issue. Historians have shown that the concept of chronic disease has its origins in policy and has always been fluid and vague; however, the classic literature in sociology and nursing has focused on modelling the evolution of chronic disease rather than on examining the concept itself. In the introduction, chronicity is explored in the ways in which it is transformed by medical innovation. Innovations in biomedicine promise to turn terminal and acute conditions in chronic and to render chronic conditions curable. Even when such promises are not fulfilled, they change the context of the illness and the experiences of patients. In such a context a specific work is required from patients, in terms of adherence to the treatments, but also in terms of pursuing experimental treatments that could make their condition chronic. The introduction offers a critical exploration of the concept of chronicity, highlighting both its fluid definition and the changes linked to medical innovation, and the ways in which it shapes the temporalities and experiences of illness in complex ways that cannot be reduced to simplified schemas and trajectories.

摘要

在特刊的引言中,格雷科和格拉伯讨论了慢性病的概念以及它在特刊稿件中的运用方式。历史学家表明,慢性病的概念源于政策,并且一直是流动的、模糊的;然而,社会学和护理学的经典文献专注于构建慢性病的演变模型,而非审视概念本身。在引言中,从医学创新对慢性病概念的转变方式这一角度对慢性病进行了探讨。生物医学创新有望将绝症和急性病转变为慢性病,并使慢性病可治愈。即便这些承诺未能实现,它们也改变了疾病的背景以及患者的体验。在这种背景下,患者不仅需要在坚持治疗方面做出特定努力,还需要在寻求可能使病情转为慢性的实验性治疗方面做出努力。引言对慢性病概念进行了批判性探讨,既强调了其定义的流动性以及与医学创新相关的变化,也阐述了它以复杂方式塑造疾病的时间性和体验的方式,而这些方式无法简化为简单的模式和轨迹。

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