Escola Superior de Tecnologia da Saúde de Lisboa-Instituto Politécnico de Lisboa (ESTeSL-IPL), 1990-096 Lisboa, Portugal.
Faculdade de Medicina, Universidade de Lisboa (FM-UL), 1649-028 Lisboa, Portugal.
Nutrients. 2022 Mar 11;14(6):1180. doi: 10.3390/nu14061180.
Nutritional status assessment (NSA) can be challenging in children with cerebral palsy (CP). There are high omission rates in national surveillance reports of weight and height information. Alternative methods are used to assess nutritional status that may be unknown to the healthcare professionals (HCP) who report these children. Caregivers experience challenges when dealing with feeding problems (FP) common in CP. Our aim was to assess the difficulties in NSA which are causing this underreport and to create solutions for registers and caregivers.
An online questionnaire was created for registers. Three meetings with HCP and caregivers were held to discuss problems and solutions regarding NSA and intervention.
HCP mentioned difficulty in NSA due to a lack of time, collaboration with others, equipment, and childrens' motor impairment. Caregivers experienced difficulty in preparing nutritious meals with adapted textures. The creation of educational tools and other strategies were suggested. A toolkit for HCP was created with the weight and height assessment methods described and other for caregivers to deal with common FP.
There are several difficulties experienced by HCP that might be overcome with educational tools, such as a toolkit. This will facilitate nutritional assessment and intervention and hopefully reduce underreporting.
脑瘫（CP）儿童的营养状况评估（NSA）具有挑战性。在国家监测报告中，体重和身高信息的漏报率很高。用于评估营养状况的替代方法可能不为报告这些儿童的医疗保健专业人员（HCP）所知。照顾者在处理 CP 常见的喂养问题（FP）时会遇到挑战。我们的目的是评估导致这些漏报的 NSA 困难，并为登记处和照顾者创建解决方案。
为登记处创建了一份在线问卷。与 HCP 和照顾者举行了三次会议，讨论 NSA 和干预措施的问题和解决方案。
HCP 提到由于缺乏时间、与他人合作、设备和儿童运动障碍，导致 NSA 困难。照顾者在准备具有适应性质地的营养膳食方面遇到困难。提出了创建教育工具和其他策略的建议。为 HCP 创建了一个工具包，其中描述了体重和身高评估方法，以及另一个供照顾者处理常见 FP 的工具包。
HCP 面临着多种困难，这些困难可以通过教育工具（如工具包）来克服。这将有助于进行营养评估和干预，并有望减少漏报。
