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[先天性心脏病成年患者的最新远程医疗综合临床路径]

[An up-to-date telemedicine integrated clinical pathway for adult patients with congenital heart disease].

作者信息

Trocchio Gianluca, Parodi Antonello, Bellotti Paolo, Pescatori Roberto, Castelli Riccardo, Ameri Pietro, Pentimalli Francesco, De Caro Enrico

机构信息

U.O.C. Cardiologia, Istituto Giannina Gaslini, Genova - Consiglio Direttivo Sezione Regionale Liguria della Società Italiana di Telemedicina (SIT).

Consiglio Direttivo Sezione Regionale Liguria della Società Italiana di Telemedicina (SIT) - U.O.C. Cardiologia, Ospedale Padre Antero Micone, Genova.

出版信息

G Ital Cardiol (Rome). 2022 Feb;23(2):90-99. doi: 10.1714/3735.37211.

Abstract

Clinical management of adult patients with congenital heart disease (GUCH) is a difficult task for multiple reasons, which include their own pathology and clinical history complexity, diagnostic complexity and organization of care. GUCH specialists are present in very small numbers and are concentrated in few centers, thus generating considerable transfer problems for patients. During the COVID-19 pandemic, telemedicine has become the standard of care, ensuring health assistance continuity, and implementing communication channels between patients and health professionals. We suggest to stratify GUCH patients into three groups, which correspond to different levels of risk (low, moderate and high, respectively) to develop complications over time, using a GUCH-specific multiparametric complexity score; so, each patient pathway will be defined according to the specific group, with indication of site, timing and type of clinical and instrumental evaluations, including virtual visits and consults. In conclusion, practical tools are provided for the implementation of updated care pathways for GUCH patients, who finally are inserted in a new model of care in which even if in-person visit still represents the crucial moment of each patient care pathway, on the other hand, telemedicine incorporation could contribute to improving and making even more complete and effective GUCH patient care.

摘要

成年先天性心脏病(GUCH)患者的临床管理是一项艰巨的任务,原因有多种,包括其自身病理和临床病史的复杂性、诊断复杂性以及护理组织。GUCH专科医生数量极少,且集中在少数几个中心,因此给患者带来了相当大的转诊问题。在新冠疫情期间,远程医疗已成为护理标准,确保了医疗援助的连续性,并建立了患者与医疗专业人员之间的沟通渠道。我们建议使用特定于GUCH的多参数复杂性评分,将GUCH患者分为三组,分别对应随着时间推移发生并发症的不同风险水平(低、中、高);这样,每个患者的诊疗路径将根据特定分组来确定,包括临床和仪器评估的地点、时间和类型,包括虚拟就诊和会诊。总之,本文提供了实用工具,用于实施针对GUCH患者的更新诊疗路径,这些患者最终被纳入一种新的护理模式,在这种模式中,尽管面对面就诊仍是每个患者护理路径的关键时刻,但远程医疗的融入有助于改善GUCH患者护理,使其更加完整和有效。

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