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远程医疗保健系统在患有慢性病或处于生命过渡阶段的儿童和青少年中的应用:意大利远程医疗协会(SIT)、意大利预防与社会儿科学会(SIPPS)、意大利儿科初级保健学会(SICuPP)、意大利儿科医生联合会(FIMP)以及家庭儿科医生协会(SIMPeF)的共识文件

Use of Telemedicine Healthcare Systems in Children and Adolescents with Chronic Disease or in Transition Stages of Life: Consensus Document of the Italian Society of Telemedicine (SIT), of the Italian Society of Preventive and Social Pediatrics (SIPPS), of the Italian Society of Pediatric Primary Care (SICuPP), of the Italian Federation of Pediatric Doctors (FIMP) and of the Syndicate of Family Pediatrician Doctors (SIMPeF).

作者信息

Esposito Susanna, Rosafio Cristiano, Antodaro Francesco, Argentiero Alberto, Bassi Marta, Becherucci Paolo, Bonsanto Fabio, Cagliero Andrea, Cannata Giulia, Capello Fabio, Cardinale Fabio, Chiriaco Tiziana, Consolaro Alessandro, Dessì Angelica, Di Mauro Giuseppe, Fainardi Valentina, Fanos Vassilios, Guarino Alfredo, Li Calzi Giada, Lodi Elisa, Maghnie Mohamad, Manfredini Luca, Malorgio Emanuela, Minuto Nicola, Modena Maria Grazia, Montori Rossano, Moscatelli Andrea, Patrone Elisa, Pescio Elena, Poeta Marco, Ravelli Angelo, Spelta Maddalena, Suppiej Agnese, Vai Sergio, Villa Luca, Zanini Rinaldo, Botti Renato, Gaddi Antonio Vittorino

机构信息

Pediatric Clinic, Department of Medicine and Surgery, University of Parma, 43126 Parma, Italy.

Family Pediatrics, AUSL Modena, 41124 Modena, Italy.

出版信息

J Pers Med. 2023 Jan 28;13(2):235. doi: 10.3390/jpm13020235.

Abstract

Telemedicine is considered an excellent tool to support the daily and traditional practice of the health profession, especially when referring to the care and management of chronic patients. In a panorama in which chronic pathologies with childhood onset are constantly increasing and the improvement of treatments has allowed survival for them into adulthood, telemedicine and remote assistance are today considered effective and convenient solutions both for the chronic patient, who thus receives personalized and timely assistance, and for the doctors, who reduce the need for direct intervention, hospitalizations and consequent management costs. This Consensus document, written by the main Italian Scientific Societies involved in the use of telemedicine in pediatrics, has the objectives to propose an organizational model based on the relationships between the actors who participate in the provision of a telemedicine service aimed at minors with chronic pathologies, identifying specific project links between the areas of telemedicine in the developmental age from the first 1000 days of life to the age adult. The future scenario will have to be able to integrate digital innovation in order to offer the best care to patients and citizens. It will have to be able to provide the involvement of patients from the very beginning of the design of any care pathway, increasing where possible the proximity of the health service to citizens.

摘要

远程医疗被认为是支持医疗行业日常和传统业务的绝佳工具,尤其是在涉及慢性病患者的护理和管理时。在儿童期发病的慢性病不断增加,且治疗的改进使患者能够存活至成年的背景下,如今远程医疗和远程协助对于慢性病患者(他们因此能获得个性化且及时的协助)以及医生(他们减少了直接干预、住院及相应管理成本的需求)而言,都被视为有效且便捷的解决方案。这份由意大利主要参与儿科远程医疗应用的科学协会撰写的共识文件,旨在基于参与为患有慢性病的未成年人提供远程医疗服务的各方之间的关系,提出一种组织模式,确定从生命最初1000天到成年的发育阶段远程医疗领域之间的具体项目联系。未来的情景将必须能够整合数字创新,以便为患者和公民提供最佳护理。它必须能够在任何护理路径的设计之初就让患者参与进来,并尽可能增加医疗服务与公民的亲近度。

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