BAppliedSci (Speech Pathology), Certified Practising Speech Pathologist, Private Practice, Valla Beach, NSW.
RN, GradDip Business Administration, BHealthSci (Nursing), MSci (Dementia Care), Parkinson@s Clinical Nurse Consultant, Mid North Coast Local Health District, NSW Health, Port Macquarie, NSW; School of Nursing, Paramedicine and Healthcare Sciences, Faculty of Science and Health, Charles Sturt University, Orange, NSW; Parkinson@s NSW.
Aust J Gen Pract. 2022 Apr;51(4):239-244. doi: 10.31128/AJGP-07-21-6094.
Communication difficulties, including hypokinetic dysarthria and swallowing difficulties (dysphagia), affect a large percentage of people diagnosed with Parkinson's disease. Onset of these symptoms has been identified in up to 78% of people with early-stage Parkinson's disease. Communication difficulties are frequently disregarded until they have a significant impact on quality of life, while the person may often be unaware of indicators of dysphagia and the associated risk of aspiration pneumonia.
The aim of this article is to increase awareness of the importance of identifying and addressing the communication and swallowing difficulties experienced by people living with Parkinson's disease.
Early identification, regular review and monitoring enable the clinician to support the implementation of evidence-based, effective interventions. Collaboration with the multidisciplinary team, including speech pathology, is needed to enable the person to live well with Parkinson's disease and to prevent aspiration pneumonia, a leading cause of death in Parkinson's disease. A vignette prepared in collaboration with a person living with Parkinson's disease and his wife provides an 'insider perspective' of the pervasive impact of difficulties with communication and swallowing.
沟通困难，包括运动障碍性构音障碍和吞咽困难（吞咽障碍），影响了很大比例被诊断患有帕金森病的人。高达 78%的早期帕金森病患者出现这些症状。这些沟通困难经常被忽视，直到它们对生活质量产生重大影响，而患者可能常常没有意识到吞咽困难的迹象及其相关的吸入性肺炎风险。
本文旨在提高对识别和解决帕金森病患者所经历的沟通和吞咽困难的重要性的认识。
早期识别、定期复查和监测使临床医生能够支持实施基于证据的有效干预措施。需要与多学科团队（包括言语病理学）合作，以使患者能够在患有帕金森病的同时过上良好的生活，并预防吸入性肺炎，这是帕金森病的主要死亡原因之一。与一位患有帕金森病的患者及其妻子合作编写的病例描述提供了一个“内部视角”，展示了沟通和吞咽困难的普遍影响。
