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脑卒中患者及其照护者对功能和康复的认知。

Perceptions of function and recovery among persons with stroke and care partners.

机构信息

Department of Physical Medicine and Rehabilitation.

Department of Occupational and Recreational Therapies.

出版信息

Rehabil Psychol. 2022 May;67(2):215-225. doi: 10.1037/rep0000441. Epub 2022 Apr 4.

DOI:10.1037/rep0000441
PMID:35377699
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10131190/
Abstract

PURPOSE/OBJECTIVE: Perceptions of function can differ between persons with stroke and care partners. The current study described the frequency of discrepancy in ratings of poststroke functioning across romantic partners and examined associations between perceptions of function, depressive symptoms, and caregiver strain.

RESEARCH METHOD/DESIGN: A secondary analysis was conducted using data from the baseline visit of an intervention pilot study. Twenty-nine dyads completed measures of perceived current functioning of the person with stroke (Stroke Impact Scale 3.0: overall percent recovery, ADL, and cognition), self-reported ratings of depressive symptoms for both partners (PROMIS Depression Short Form v8b), and self-reported caregiver strain for the care partners only (Caregiver Strain Index).

RESULTS

A discrepancy of over 10 points on the SIS 3.0 variables was seen in over 50% of dyads for all subscales, with care partners rating worse recovery on average. Actor partner interdependence models showed that more depressive symptoms were associated with perceptions of worse overall recovery and ADL function in persons with stroke, whereas more depressive symptoms were associated with perceptions of worse cognitive and ADL function in care partners. Discrepancy in perception of ADL function was associated with more caregiver strain though this was inextricable from the overall level of impairment in ADL function perceived by the care partner.

CONCLUSIONS/IMPLICATIONS: These findings suggest that discrepancy in perceptions of stroke recovery among romantic partners is common. This underscores the importance of perception when considering risk for depression and caregiver strain as well as how to best promote psychological resilience following stroke. (PsycInfo Database Record (c) 2022 APA, all rights reserved).

摘要

目的/目标:脑卒中患者及其照护者对功能的感知可能存在差异。本研究描述了浪漫伴侣对脑卒中后功能的评估差异的频率,并探讨了功能感知、抑郁症状和照护者负担之间的关联。

研究方法/设计:使用干预性试点研究基线访视的数据进行二次分析。29 对夫妇完成了脑卒中患者当前功能感知的评估(脑卒中影响量表 3.0:总体恢复百分比、ADL 和认知)、双方自我报告的抑郁症状评估(PROMIS 抑郁短表 v8b)和仅照护者自我报告的照护者负担评估(照护者负担指数)。

结果

在所有子量表中,超过 50%的夫妇的 SIS 3.0 变量差异超过 10 分,平均而言,照护者的评分恢复较差。演员-伙伴相互依存模型显示,脑卒中患者的抑郁症状越多,感知的整体恢复和 ADL 功能越差,而照护者的抑郁症状越多,感知的认知和 ADL 功能越差。感知 ADL 功能的差异与照护者的负担增加有关,但这与照护者感知的 ADL 功能总体损伤程度密不可分。

结论/意义:这些发现表明,浪漫伴侣对脑卒中康复的感知差异很常见。这强调了在考虑抑郁和照护者负担的风险以及如何最好地促进脑卒中后的心理弹性时,感知的重要性。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/b527/10131190/0de49c39fdb4/nihms-1889169-f0002.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/b527/10131190/c62f9dc25408/nihms-1889169-f0001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/b527/10131190/0de49c39fdb4/nihms-1889169-f0002.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/b527/10131190/c62f9dc25408/nihms-1889169-f0001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/b527/10131190/0de49c39fdb4/nihms-1889169-f0002.jpg

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BMC Neurol. 2021 Aug 13;21(1):315. doi: 10.1186/s12883-021-02338-x.
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Heart Disease and Stroke Statistics-2020 Update: A Report From the American Heart Association.《心脏病与卒中统计-2020 更新:来自美国心脏协会的报告》。
Circulation. 2020 Mar 3;141(9):e139-e596. doi: 10.1161/CIR.0000000000000757. Epub 2020 Jan 29.
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Why do people misunderstand stroke symptoms? How background knowledge affects causal attributions for ambiguous stroke symptoms.
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Development of a novel positive psychology-based intervention for couples post-stroke.基于积极心理学的脑卒中后夫妇新型干预措施的研发。
Rehabil Psychol. 2018 Feb;63(1):43-54. doi: 10.1037/rep0000181.
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Poststroke Depression: A Scientific Statement for Healthcare Professionals From the American Heart Association/American Stroke Association.中风后抑郁症:美国心脏协会/美国中风协会为医疗保健专业人员发布的科学声明。
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