Department of Neonatology, Amsterdam University Medical Centers, location VUmc, Amsterdam, The Netherlands.
Department of Neonatology, Wilhelmina Children's Hospital, University Medical Center Utrecht, Utrecht, The Netherlands.
Acta Paediatr. 2022 Jul;111(7):1324-1330. doi: 10.1111/apa.16361. Epub 2022 Apr 22.
Admitting an infant to a neonatal intensive care unit (NICU) is stressful for parents. A great source of stress is the loss of their desired parental role. This study explores parents' experiences and needs during a high-risk pregnancy in preparation for their role as parents of a preterm infant.
An exploratory qualitative study was conducted among parents with a preterm infant admitted to two level-III NICUs in the Netherlands. A thematic analysis was performed.
Nineteen interviews were conducted with parents of preterm infants (26-34 weeks gestational age). Getting a grip in the middle of chaos was identified as the central theme. In the pre-admission phase, coping with potential preterm parenthood was a theme, with coping strategies as subthemes that changed over time from avoidance to being ready to parent a preterm infant. The theme envisioning the NICU emerged in the NICU admission phase, with subthemes preterm care journey and opportunities for involvement fostering parental empowerment.
Timing and content of information about a parental role in the NICU should be tailored to the individual expectant parent. A customisable intervention bundle may provide a vision of the NICU and the parents' active role in care.
将婴儿送入新生儿重症监护病房（NICU）会给父母带来压力。压力的一个主要来源是失去他们期望的父母角色。本研究探讨了父母在高危妊娠期间的经历和需求，为他们作为早产儿父母的角色做准备。
在荷兰的两家三级 NICU 中，对患有早产儿的父母进行了一项探索性定性研究。进行了主题分析。
对 19 名早产儿（26-34 周胎龄）的父母进行了访谈。在混乱中找到头绪是核心主题。在入院前阶段，应对潜在的早产儿父母身份是一个主题，应对策略是随着时间的推移从回避到准备好成为早产儿父母的子主题。在 NICU 入院阶段出现了设想 NICU 的主题，有子主题是早产儿护理之旅和参与机会，增强了父母的权能。
应根据个体准父母的情况调整有关 NICU 中父母角色的信息的时间和内容。可定制的干预包可以提供 NICU 的愿景以及父母在护理中的积极作用。
