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患有脊柱裂儿童的父亲们。

The fathers of children with spina bifida.

作者信息

Evans O, Tew B, Laurence K M

出版信息

Z Kinderchir. 1986 Dec;41 Suppl 1:42-4. doi: 10.1055/s-2008-1043397.

Abstract

Health, employment, marital outcome and involvement with the child, of fathers with spina bifida (IF) and with "normal" controls (CF), were analysed at intervals from birth to 18 years. By 10 years IF had poorer reported health than did CF. By 18 years IF had more specific health problems, many being psychosomatic in nature, than CF or index and control mothers. This pattern was also reflected in the GHQ scores; IF had a significantly higher incidence of symptoms than CF. Practical involvement of IF and CF was generally little different but at 18 years 30% of IF were still involved in their child's "personal care". Employment and income amongst IF and CF did not differ in the early years. By 18 years, significantly more IF were claiming invalidity benefit, while they were also more likely to be the family's only wage-earner. Our evidence suggests that IF suffered surprisingly severely as a result of emotional strain. Both the psychological and practical problems could be alleviated to the benefit of all family members.

摘要

对患有脊柱裂的父亲(IF)和“正常”对照父亲(CF)从出生到18岁期间的健康状况、就业情况、婚姻状况以及与孩子的互动进行了阶段性分析。到10岁时,报告显示IF的健康状况比CF差。到18岁时,IF比CF以及受试母亲和对照母亲有更多特定的健康问题,其中许多问题本质上是心身问题。这种模式在一般健康问卷(GHQ)得分中也有所体现;IF的症状发生率明显高于CF。IF和CF在实际参与方面总体差异不大,但到18岁时,30%的IF仍参与孩子的“个人护理”。IF和CF在早期的就业和收入情况没有差异。到18岁时,显著更多的IF申领了伤残津贴,同时他们也更有可能是家庭唯一的挣钱者。我们的证据表明,IF因情绪压力而遭受了惊人的严重影响。心理和实际问题都可以得到缓解,这将使所有家庭成员受益。

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