Finnimore Ann, Theodoros Deborah, Rumbach Anna
School of Health and Rehabilitation Sciences, The University of Queensland, Brisbane, QLD 4067, Australia.
Speech Pathology Department, The Prince Charles Hospital, Metro North Hospital & Health Service, Brisbane, QLD 4032, Australia.
Brain Sci. 2022 Mar 24;12(4):433. doi: 10.3390/brainsci12040433.
Quality of life (QoL) for people with Parkinson’s Disease (PD) is diminished by speech and communication changes. The impact of PD Check-In, an intervention for supported self-managed maintenance of speech following LSVT LOUD®, on QoL of people with PD was investigated. Sixteen people with PD and dysarthria completed LSVT LOUD followed by PD Check-Ins up until 24 months post-treatment. Self-rated QoL and voice handicap scales were used to determine the psychosocial and perceived impact of PD Check-In on the speech and voice of people with PD. The perceived impact of PD Check-In on speech and voice was also sought from 15 communication partners (CPs). A significant treatment effect for time was identified for the Dysarthria Impact Profile (DIP), Voice Handicap Index (VHI), and Voice Handicap Index-Partner (VHI-P) (p < 0.05). There was no significant effect for time for the Parkinson’s Disease Questionnaire (PDQ-39). Planned comparisons of timepoints for DIP, VHI, and VHI-P showed no significant differences (p > 0.01). Comparison of perceived voice handicap by people with PD and CPs revealed no significant differences (p > 0.01). The impact of PD Check-In on QoL of people with PD and CPs for 24 months post-LSVT-LOUD is unclear. Self-reported outcome measures alone do not fully capture changes in QoL in PD.
帕金森病（PD）患者的生活质量（QoL）会因言语和沟通变化而降低。本研究调查了PD Check-In对PD患者生活质量的影响，PD Check-In是一种在LSVT LOUD®之后用于支持言语自我管理维持的干预措施。16名患有构音障碍的PD患者完成了LSVT LOUD治疗，随后进行PD Check-In，直至治疗后24个月。使用自评生活质量和嗓音障碍量表来确定PD Check-In对PD患者言语和嗓音的心理社会及感知影响。还从15名沟通伙伴（CPs）那里获取了他们对PD Check-In对言语和嗓音的感知影响。在构音障碍影响概况（DIP）、嗓音障碍指数（VHI）和嗓音障碍指数-伙伴（VHI-P）方面发现了显著的时间治疗效应（p < 0.05）。帕金森病问卷（PDQ-39）在时间上没有显著效应。对DIP、VHI和VHI-P各时间点的计划比较显示无显著差异（p > 0.01）。PD患者和CPs对嗓音障碍的感知比较显示无显著差异（p > 0.01）。PD Check-In对LSVT-LOUD后24个月PD患者和CPs生活质量的影响尚不清楚。仅靠自我报告的结局指标并不能完全反映PD患者生活质量的变化。
