Clinical Governance Unit, The Sydney Children's Hospitals Network, Sydney, NSW, Australia.
Population Child Health Research Group, School of Women's and Children's Health, Faculty of Medicine, University of New South Wales, Sydney, NSW, Australia.
J Adv Nurs. 2022 Sep;78(9):2933-2948. doi: 10.1111/jan.15256. Epub 2022 Apr 22.
To understand what constitutes a good experience of care for inpatient children and young people with intellectual disability as perceived by nursing staff.
Interpretive qualitative study.
Focus groups with clinical nursing staff from speciality neurological/neurosurgical and adolescent medicine wards across two specialist tertiary children's hospitals in Australia were conducted between March and May 2021. Data analysis followed interpretative analysis methods to develop themes and codes which were mapped to a conceptual model of safe care.
Six focus groups with 29 nurses of varying experience levels were conducted over 3 months. Themes and codes were mapped to the six themes of the conceptual model: use rapport, know the child, negotiate roles, shared learning, build trust and relationships, and past experiences. The analysis revealed two new themes that extended the conceptual model to include; the unique role of a paediatric nurse, and joy and job satisfaction, with a third contextual theme, impacts of COVID-19 pandemic restrictions. With the perspectives of paediatric nurses incorporated into the model we have enhanced our model of safe care specifically for inpatient paediatric nursing care of children and young people with intellectual disability.
Including perceptions of paediatric nurses confirmed the position of the child with intellectual disability being at the centre of safe care, where care is delivered as a partnership between nursing staff, child or young person and their parents/family and the hospital systems and processes.
The enhanced model offers a specialized framework for clinical staff and health managers to optimize the delivery of safe care for children and young people with intellectual disability in hospital.
了解护理人员如何看待住院智障儿童和青少年的良好护理体验。
解释性定性研究。
2021 年 3 月至 5 月，在澳大利亚两家专门的儿童医院的神经科/神经外科和青少年医学病房的临床护理人员中进行了焦点小组讨论。数据分析遵循解释性分析方法，以开发主题和代码，这些主题和代码映射到安全护理的概念模型。
在 3 个月的时间里，进行了 6 次焦点小组讨论，共有 29 名经验水平不同的护士参加。主题和代码被映射到概念模型的 6 个主题上：建立融洽关系、了解孩子、协商角色、共同学习、建立信任和关系，以及过去的经验。分析结果揭示了两个新的主题，将概念模型扩展到包括：儿科护士的独特角色，以及快乐和工作满意度，以及第三个背景主题，即 COVID-19 大流行限制的影响。通过将儿科护士的观点纳入模型，我们特别针对智障儿童和青少年的住院儿科护理，增强了我们的安全护理模型。
纳入儿科护士的观点证实了智障儿童在安全护理中的中心地位，护理是由护理人员、儿童或青少年及其父母/家人以及医院系统和流程之间的伙伴关系提供的。
增强后的模型为临床工作人员和卫生管理人员提供了一个专门的框架，以优化为智障儿童和青少年在医院提供安全护理。
