Bilodeau Karine, Gouin Marie-Michelle, Lecours Alexandra, Lederer Valérie, Durand Marie-José, Kilpatrick Kelley, Lepage David, Ladouceur-Deslauriers Lauriane, Dorta Tomas
Faculty of Nursing, University of Montreal, Montreal, QC, Canada.
Centre de recherche Hopital Maisonneuve Rosemont, Montreal, QC, Canada.
JMIR Res Protoc. 2022 Apr 22;11(4):e37009. doi: 10.2196/37009.
The mortality rate from breast cancer has been declining for many years, and the population size of working-age survivors is steadily increasing. However, the recurrent side effects of cancer and its treatment can result in multiple disabilities and disruptions to day-to-day life, including work disruptions. Despite the existing knowledge of best practices regarding return to work (RTW) for breast cancer survivors, only a few interdisciplinary interventions have been developed to address the individualized needs and multiple challenges of breast cancer survivors, health care professionals, and employer and insurer representatives. Thus, it seems appropriate to develop RTW interventions collaboratively by using a co-design approach with these specific stakeholders.
This paper presents a protocol for developing and testing an innovative, interdisciplinary pilot intervention based on a co-design approach to better support RTW and job retention after breast cancer treatment.
First, a participatory research approach will be used to develop the intervention in a co-design workshop with 12 to 20 participants, including people affected by cancer, employer and insurer representatives, and health care professionals. Next, a pilot intervention will be tested in a primary care setting with 6 to 8 women affected by breast cancer. The acceptability and feasibility of the pilot intervention will be pretested through semistructured interviews with participants, health care professionals, and involved patient partners. The transcribed data will undergo an iterative content analysis.
The first phase of the project-the co-design workshop-was completed in June 2021. The pilot test of the intervention will begin in spring 2022. The results from the test will be available in late 2022.
The project will offer novel data regarding the use of the co-design approach for the development of innovative, co-designed interventions. In addition, it will be possible to document the acceptability and feasibility of the pilot intervention with a primary care team. Depending on the results obtained, the intervention could be implemented on a larger scale.
INTERNATIONAL REGISTERED REPORT IDENTIFIER (IRRID): DERR1-10.2196/37009.
多年来，乳腺癌死亡率一直在下降，处于工作年龄的幸存者人数也在稳步增加。然而，癌症及其治疗的反复副作用可能导致多种残疾并扰乱日常生活，包括工作中断。尽管现有关于乳腺癌幸存者重返工作岗位（RTW）的最佳实践知识，但仅开发了少数跨学科干预措施来满足乳腺癌幸存者、医疗保健专业人员以及雇主和保险公司代表的个性化需求和多重挑战。因此，采用共同设计方法与这些特定利益相关者合作开发RTW干预措施似乎是合适的。
本文介绍了一项基于共同设计方法开发和测试创新型跨学科试点干预措施的方案，以更好地支持乳腺癌治疗后的RTW和工作保留。
首先，将采用参与式研究方法，在一个有12至20名参与者的共同设计研讨会上开发干预措施，参与者包括癌症患者、雇主和保险公司代表以及医疗保健专业人员。接下来，将在初级保健环境中对6至8名受乳腺癌影响的女性进行试点干预测试。将通过与参与者、医疗保健专业人员和参与的患者伙伴进行半结构化访谈，对试点干预措施的可接受性和可行性进行预测试。转录的数据将进行迭代内容分析。
该项目的第一阶段——共同设计研讨会——于2021年6月完成。干预措施的试点测试将于2022年春季开始。测试结果将于2022年底公布。
该项目将提供关于使用共同设计方法开发创新型共同设计干预措施的新数据。此外，还可以记录初级保健团队对试点干预措施的可接受性和可行性。根据获得的结果，该干预措施可能会得到更广泛的实施。
国际注册报告识别码（IRRID）：DERR1-10.2196/37009。
