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“我仍然是女王,我仍然坐在我的宝座上……”:女性对性别和痴呆症共存的思考。

"I'm still the queen and I'm still on my throne…": Women's reflections on gender and living with dementia.

机构信息

Centre for Education and Research on Aging & Health, Lakehead University, Thunder Bay, Ontario, Canada.

Alzheimer Society of Ontario, Toronto, Ontario, Canada.

出版信息

J Women Aging. 2023 Jan-Feb;35(1):113-127. doi: 10.1080/08952841.2022.2054656. Epub 2022 Apr 22.

DOI:10.1080/08952841.2022.2054656
PMID:35452376
Abstract

People with dementia have long been defined by the label of dementia, rather than by other aspects of their identities including gender. As a result, little research has focused on gender and dementia, particularly through the perspectives of those living with dementia. The purpose of this study was to explore the experiences and perspectives of women living with dementia. Specifically, we sought to understand how gender structured their experiences of receiving and coping with a diagnosis, services, and important relationships and supports. Utilizing a qualitative research approach, twenty-one women living with dementia participated in individual or group interviews. Women discussed the following aspects of gender and dementia: caregiver roles, perceptions of gender differences, the impact of dementia on families, and women's strength and resilience. The findings of this study indicate a clear need for further research to explore diversity and gendered experiences for those diagnosed with dementia.

摘要

患有痴呆症的人长期以来一直被贴上痴呆症的标签,而不是通过他们身份的其他方面,包括性别。因此,很少有研究关注性别与痴呆症,特别是通过那些患有痴呆症的人的观点。本研究的目的是探讨女性痴呆症患者的经历和观点。具体来说,我们试图了解性别如何构建他们接受和应对诊断、服务以及重要关系和支持的经历。本研究采用定性研究方法,21 名患有痴呆症的女性参加了个人或小组访谈。女性讨论了性别和痴呆症的以下方面:照顾者角色、对性别差异的看法、痴呆症对家庭的影响以及女性的力量和韧性。本研究的结果表明,需要进一步研究,以探讨那些被诊断患有痴呆症的人的多样性和性别化体验。

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