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本文引用的文献

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Global Cancer Statistics 2020: GLOBOCAN Estimates of Incidence and Mortality Worldwide for 36 Cancers in 185 Countries.《全球癌症统计数据 2020:全球 185 个国家和地区 36 种癌症的发病率和死亡率估计》。
CA Cancer J Clin. 2021 May;71(3):209-249. doi: 10.3322/caac.21660. Epub 2021 Feb 4.
2
Patient-reported outcomes and experiences from the perspective of colorectal cancer survivors: meta-synthesis of qualitative studies.从结直肠癌幸存者角度看患者报告的结局与经历:定性研究的元整合
J Patient Rep Outcomes. 2020 Apr 25;4(1):27. doi: 10.1186/s41687-020-00195-9.
3
Using Mixed-Methods Research to Study Coping Strategies among Colorectal Cancer Patients.运用混合方法研究结直肠癌患者的应对策略。
Asia Pac J Oncol Nurs. 2019 Jun 24;7(1):81-87. doi: 10.4103/apjon.apjon_20_19. eCollection 2020 Jan-Mar.
4
Predictors for use of psychosocial services in patients with metastatic colorectal cancer receiving first line systemic treatment.转移性结直肠癌一线系统治疗患者使用心理社会服务的预测因素。
BMC Cancer. 2019 Feb 1;19(1):115. doi: 10.1186/s12885-019-5318-9.
5
Improving patient and caregiver outcomes in oncology: Team-based, timely, and targeted palliative care.改善肿瘤学患者和照护者的结局:以团队为基础、及时且有针对性的姑息治疗。
CA Cancer J Clin. 2018 Sep;68(5):356-376. doi: 10.3322/caac.21490. Epub 2018 Sep 13.
6
The Determinants of Palliative Care Use in Patients With Colorectal Cancer: A National Study.结直肠癌患者姑息治疗使用的决定因素:一项全国性研究。
Am J Hosp Palliat Care. 2018 Oct;35(10):1295-1303. doi: 10.1177/1049909118765092. Epub 2018 Mar 26.
7
Spiritual Needs and Quality of Life of Patients with Cancer.癌症患者的精神需求与生活质量
Indian J Palliat Care. 2017 Oct-Dec;23(4):437-444. doi: 10.4103/IJPC.IJPC_53_17.
8
The feasibility and benefit of a brief psychosocial intervention in addition to early palliative care in patients with advanced cancer to reduce depressive symptoms: a pilot randomized controlled clinical trial.对于晚期癌症患者,在早期姑息治疗基础上进行简短心理社会干预以减轻抑郁症状的可行性和益处:一项试点随机对照临床试验。
BMC Cancer. 2017 Aug 23;17(1):564. doi: 10.1186/s12885-017-3560-6.
9
Retrospective evaluation of palliative care and hospice utilization in hospitalized patients with metastatic breast cancer.转移性乳腺癌住院患者姑息治疗与临终关怀利用情况的回顾性评估
Palliat Med. 2016 Oct;30(9):854-61. doi: 10.1177/0269216316637238. Epub 2016 Mar 15.
10
How to evaluate sexual health in cancer patients: development of the EORTC sexual health questionnaire for cancer patients.如何评估癌症患者的性健康:欧洲癌症研究与治疗组织(EORTC)癌症患者性健康问卷的编制
Transl Androl Urol. 2015 Apr;4(2):95-102. doi: 10.3978/j.issn.2223-4683.2014.11.08.

发展、实施和评估结直肠癌患者的姑息治疗方案:一项混合方法研究方案。

Development, implementation and evaluation a palliative care program for colorectal cancer patients: a mixed methods protocol study.

机构信息

Cancer Prevention Research Center, Department of Adult Health Nursing, Faculty Of Nursing and Midwifery, Isfahan University of Medical Sciences, Isfahan, Iran.

Student Research Committee, Faculty Of Nursing and Midwifery, Isfahan University of Medical Sciences, Isfahan, Iran.

出版信息

BMC Cancer. 2022 Apr 22;22(1):441. doi: 10.1186/s12885-022-09538-9.

DOI:10.1186/s12885-022-09538-9
PMID:35459102
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC9028062/
Abstract

INTRODUCTION

Colorectal cancer(CRC) patients are among the incurable groups who need comprehensive palliative care covering all aspects including physical, mental, social, and spiritual. The purpose of this study is to develop, implement, and evaluate a holistic palliative care program for CRC patients in order to improve quality of life of CRC patients.

METHODS

This study is an exploratory mixed methods study which will be conducted using a sequential qualitative-quantitative design (QUAL quan) consists of four sequential steps using the approach proposed by Ewles & Sminett to develop the program. In the first phase, a qualitative study (semi-structured interview) will be conducted to discover the needs of CRC patients from the perspective of patients, family members and care providers. In the second phase, the literature review will be performed with the aim of confirming and completing the discovering new needs. In the third phase, in order to prioritize the identified needs and prepare a initial draft of the palliative care program will be done a panel of experts. In the fourth phase, the part of the developed program according to the opinions of the panel of experts, will be implemented as quasi-experimental intervention and the effect of intervention on quality of life will be evaluated.

DISCUSSION

This results of this study are expected to meet the needs of CRC patients and their families through providing a holistic care and improve their quality of life in the socio-cultural context of Iran. This program can be useful in providing care, education, policy making and for future research.

摘要

简介

结直肠癌(CRC)患者属于无法治愈的群体之一,需要涵盖身体、心理、社会和精神等各个方面的综合姑息治疗。本研究的目的是为 CRC 患者开发、实施和评估全面的姑息治疗方案,以提高 CRC 患者的生活质量。

方法

本研究是一项探索性混合方法研究,将采用顺序定性定量设计(QUAL quan)进行,该设计由 Ewles 和 Sminett 提出,用于开发方案。在第一阶段,将进行定性研究(半结构式访谈),从患者、家属和护理人员的角度发现 CRC 患者的需求。在第二阶段,将进行文献回顾,旨在确认和补充新发现的需求。在第三阶段,为了确定已确定需求的优先级并编写姑息治疗方案的初稿,将邀请专家小组进行。在第四阶段,将根据专家小组的意见实施已开发方案的一部分作为准实验干预,并评估干预对生活质量的影响。

讨论

预计本研究结果将通过提供全面的关怀来满足 CRC 患者及其家属的需求,并改善他们在伊朗社会文化背景下的生活质量。该方案可用于提供护理、教育、制定政策和未来的研究。