南非一家临终关怀机构收治的癌症患者照料者的经历。
The experiences of caregivers of patients living with cancer admitted to a hospice in South Africa.
作者信息
Ketlogetswe Tinalipi S, Van Rensburg Jacoba J Jansen, Maree Johanna Elizabeth
机构信息
MSc candidate, Department of Nursing Education, University of the Witwatersrand, South Africa.
Lecturer, Department of Nursing Education, University of the Witwatersrand, South Africa.
出版信息
Int J Palliat Nurs. 2022 Apr 2;28(4):164-171. doi: 10.12968/ijpn.2022.28.4.164.
BACKGROUND
Caregivers share cancer experiences with patients, but little is known about their own experiences in the end-of-life phase, the most difficult phase in the caregiving journey.
AIMS
To describe the experiences of caregivers of cancer patients admitted to a hospice in South Africa.
METHODS
A qualitative design was used; 22 (n=22) participants were purposively selected and in-depth interviews were conducted. Analysis of the data was by qualitative content analysis.
FINDINGS
A total of three themes arose from the data: emotional responses towards the caregiver role, personal cost of caregiving and spiritual issues relating to caregiving.
CONCLUSION
Caring for cancer patients during the last phase of life was not easy. Responsibilities overwhelmed the participants and they were emotionally exhausted. They lacked knowledge of how to care and experienced a heavy financial burden. Despite the challenges that they faced, faith and religious practices served as a coping mechanism and kept some going.
背景
照顾者会与患者分享癌症经历，但对于他们在临终阶段（照顾过程中最艰难的阶段）自身的经历却知之甚少。
目的
描述南非一家临终关怀机构中癌症患者照顾者的经历。
方法
采用定性研究设计；有目的地选取了22名参与者并进行了深入访谈。数据通过定性内容分析法进行分析。
结果
数据共产生了三个主题：对照顾者角色的情感反应、照顾的个人代价以及与照顾相关的精神问题。
结论
在生命的最后阶段照顾癌症患者并非易事。责任压得参与者喘不过气，他们身心俱疲。他们缺乏护理知识，且面临沉重的经济负担。尽管面临诸多挑战，但信仰和宗教活动起到了应对机制的作用，支撑着一些人继续前行。
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