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QuestLeukemia移动应用程序的可用性和可接受性:一项针对慢性病儿童的教育和心理干预的试点研究。

Usability and Acceptability of the QuestLeukemia Mobile Application: A Pilot Study for An Educational and Psychological Intervention for Children with Chronic Illnesses.

作者信息

Meyer Rachel, Wang Kira, Yearley Alexander, Grob Sydney, Zeitlin Jacob, Bloomfeld Jack, You Melissa, Lee Diane, Bonner Melanie, Shah Nirmish, Page Kristin

机构信息

213852Duke University Hospital, Durham, NC, USA.

3065Duke University, Durham, NC, USA.

出版信息

J Pediatr Hematol Oncol Nurs. 2022 May-Jun;39(3):137-142. doi: 10.1177/27527530221068422. Epub 2022 Jan 25.

Abstract

It is widely accepted that educational interventions benefit children with chronic diseases (disease awareness and autonomy) or those undergoing medical procedures (decreased anxiety and improved satisfaction). Hematopoietic cell transplantation (HCT) is an intensive procedure to treat life-threatening diseases but is associated with multiple adverse medical experiences. QuestLeukemia (QuestED, Durham, NC) is a mobile app designed to educate pediatric patients preparing for HCT through age-appropriate videos and quizzes. Here we describe the results of the initial pilot study assessing acceptability and feasibility of QuestLeukemia app. Eligible participants were selected from a convenience sample (inpatient HCT unit and outpatient clinic). Participants spent 30-60 min using the app then completed a survey assessing the app for usability, accessibility, and user satisfaction. Participants identified the app as a useful tool for gaining disease-related knowledge and reported greater autonomy over their disease process. On average, patients indicated that the app was easy to use ( = 4.93), enjoyable ( = 4.79), and comprehensive ( = 4.71). Parents followed similar trends of satisfaction with the app. Pediatric HCT providers likewise reported that the app was easy to use ( = 4.22), enjoyable ( = 4.85), and educationally comprehensive ( = 4.77). The QuestLeukemia mobile application prototype provides an easy, enjoyable, and educational tool for pediatric patients undergoing HCT. This application was well received by patients, parents, and providers. These findings will be used to design future iterations of the game in clinical care.

摘要

人们普遍认为,教育干预措施对患有慢性病的儿童(疾病认知和自主性)或正在接受医疗程序的儿童(减轻焦虑和提高满意度)有益。造血细胞移植(HCT)是一种治疗危及生命疾病的强化程序,但会带来多种不良医疗体验。QuestLeukemia(QuestED,北卡罗来纳州达勒姆)是一款移动应用程序,旨在通过适合儿童年龄的视频和测验对准备接受造血细胞移植的儿科患者进行教育。在此,我们描述了评估QuestLeukemia应用程序可接受性和可行性的初步试点研究结果。符合条件的参与者从便利样本(住院造血细胞移植病房和门诊诊所)中选取。参与者使用该应用程序30 - 60分钟,然后完成一项调查,评估该应用程序的可用性、可及性和用户满意度。参与者将该应用程序视为获取疾病相关知识的有用工具,并报告对其疾病过程有更大的自主权。平均而言,患者表示该应用程序易于使用(= 4.93)、有趣(= 4.79)且内容全面(= 4.71)。家长对该应用程序的满意度也呈现类似趋势。儿科造血细胞移植提供者同样报告称该应用程序易于使用(= 4.22)、有趣(= 4.85)且教育内容全面(= 4.77)。QuestLeukemia移动应用程序原型为接受造血细胞移植的儿科患者提供了一个简单、有趣且具有教育意义的工具。该应用程序受到了患者、家长和提供者的好评。这些发现将用于设计该游戏在临床护理中的未来版本。

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