Division of Occupational Therapy, Department of Neurobiology Care Sciences and Society, Karolinska Institutet, Sweden.
Department of Occupational Therapy, Kenya Medical Training College (KMTC), Nairobi, Kenya.
Top Stroke Rehabil. 2023 Jul;30(5):483-492. doi: 10.1080/10749357.2022.2070360. Epub 2022 Apr 30.
Stroke is currently one of the greatest causes of disability and death in Kenya. Previous research indicates a lack of knowledge regarding how participation in everyday life is experienced after a stroke in Sub-Sahara Africa.
The aim was to explore and describe experiences of participation in everyday life for people who had had a stroke living in Nairobi, Kenya.
A qualitative study design using semi-structured interviews with nine people who have had a stroke, together with their caregivers. The inclusion criteria were: 1) stroke diagnosis 2) no psychiatric diagnosis, and 3) ability to understand and respond to instructions in English, or local language. All participants were living in the community, members of the Stroke Association of Kenya, and participated voluntarily. The transcribed interviews were analyzed using qualitative content analysis.
The participants expressed their experiences of participation in everyday life, along with how resources and barriers affected their participation. Three categories were found:, and 3)
After stroke, people's experiences of participation in everyday life changed. Performing activities that the person found meaningful added a sense of increased participation and satisfaction. The experience of being dependent in everyday activities and finances appeared to reduce perceived participation. Participation in a group connected to a patient association with like-minded people contributed to a new role, and a sense of belonging.
中风目前是肯尼亚导致残疾和死亡的最大原因之一。先前的研究表明，在撒哈拉以南非洲，人们对于中风后如何参与日常生活的知识匮乏。
旨在探索和描述居住在肯尼亚内罗毕的中风患者参与日常生活的体验。
采用半结构式访谈的定性研究设计，共访谈了 9 名中风患者及其照顾者。纳入标准为：1）中风诊断；2）无精神科诊断；3）能够理解和用英语或当地语言做出回应。所有参与者均居住在社区，为肯尼亚中风协会的成员，且自愿参与。对转录的访谈进行了定性内容分析。
参与者表达了他们参与日常生活的体验，以及资源和障碍如何影响他们的参与。发现了三个类别：1）能够参与；2）有困难参与；3）无法参与。
中风后，人们参与日常生活的体验发生了变化。从事对患者有意义的活动会增加参与感和满足感。在日常生活和财务方面依赖他人的体验似乎会降低感知到的参与度。参与与有共同想法的患者群体相关联的患者协会有助于建立新的角色和归属感。
