Department of Neurobiology, Care Sciences and Society, Karolinska Institutet, Huddinge, Sweden.
Centre for Research & Development, Gävleborg - Uppsala University, Gävleborg, Sweden.
Scand J Occup Ther. 2023 Feb;30(2):228-238. doi: 10.1080/11038128.2022.2089230. Epub 2022 Jun 25.
Fatigue is common and can be challenging after stroke.
To explore how post-stroke fatigue (PSF) was experienced and handled among people with stroke in their performance of everyday activities and in participation in social activities five years after stroke.
Nine persons who perceived PSF one year after stroke onset were interviewed five years later. The interviews were analysed using qualitative content analysis.
Most participants experienced PSF even five years after stroke and reported longstanding difficulties in everyday activities. Handling fatigue-a long slow process with invisible adjustments in everyday life emerged as the theme. By implementing new strategies in everyday life their PSF lessened over time. Understanding among significant others as to how PSF appears and providing information about PSF early after stroke was perceived important.
This study adds new knowledge regarding experiences of PSF and long-term support needs. Even if PSF still was reported the participants experienced improvements in everyday life through the application of new strategies. Information about PSF and strategies for managing everyday life should be provided during rehabilitation.
This study is one out of only a few focussing on long-term PSF and adjustment to its consequences in everyday life.
疲劳在卒中后很常见，且具有一定挑战性。
探索卒中后五年内，卒中患者在进行日常活动和参与社会活动时，对疲劳的体验和应对方式。
对发病一年后仍感知到疲劳的 9 名患者进行了访谈，五年后再次进行访谈。采用定性内容分析法对访谈进行分析。
大多数患者在卒中五年后仍存在疲劳感，并报告了日常活动中持续存在的困难。疲劳的处理——一个在日常生活中进行的长期缓慢的、具有隐蔽性的调整过程，是该研究的主题。通过在日常生活中实施新策略，他们的疲劳感逐渐减轻。重要他人对疲劳表现的理解以及在卒中后早期提供有关疲劳的信息，被认为是重要的。
本研究增加了关于疲劳体验和长期支持需求的新知识。尽管仍有疲劳感报告，但患者通过应用新策略，改善了日常生活。在康复过程中，应提供有关疲劳的信息和管理日常生活的策略。
本研究是为数不多的关注长期疲劳及其对日常生活影响的调整的研究之一。
