Department of Pediatrics, Indiana University School of Medicine, Indianapolis, Indiana.
Department of Psychiatry and Behavioral Sciences, University of Texas Medical Branch, Galveston, Texas.
J Clin Sleep Med. 2022 Aug 1;18(8):1921-1931. doi: 10.5664/jcsm.10024.
To assess parental experience of their child's obstructive sleep apnea (OSA) detection process and inform the development of interventions and health communication strategies to improve OSA detection.
Semistructured interviews were conducted with 30 parents of children (ages 3-14) who snored and were referred for an overnight polysomnogram (PSG). Parents (60.0% Black race, 93.3% mothers) described how their child was referred for PSG and their perceptions and feelings throughout the detection process. Parents also completed an OSA knowledge measure. Interview data were analyzed using a descriptive approach and thematic analysis was conducted using the NVivo 12 software system.
Twenty-one themes were identified across 5 categories (first steps; PSG facilitators and barriers; health information; health care experiences; parent experiences). Respondents experienced multiple pathways to OSA detection, with more than half of referrals initiated by parental concerns (vs. screening efforts). Parents reported a willingness to take any necessary steps to help their child. Both barriers and facilitators to completing a PSG were described. Parents observed both nighttime and daytime symptoms related to OSA in their child but often did not connect the symptoms to each other until later in the process. Participants had varying degrees of OSA knowledge, with a mean knowledge score of 56% correct (range 10%-90% correct).
Parental experiences highlight aspects of the health care system that are both effective and ineffective in detecting children with OSA. Implications include a need for strategies to promote timely detection and to provide parents with accurate information about pediatric OSA.
Honaker SM, Gopalkrishnan A, Brann M, Wiehe S, Clark AA, Chung A. "It made all the difference": a qualitative study of parental experiences ith pediatric obstructive sleep apnea detection. . 2022;18(8):1921-1931.
评估父母对子女阻塞性睡眠呼吸暂停（OSA）检测过程的体验，为干预措施和健康沟通策略的制定提供信息，以提高 OSA 的检测率。
对 30 名（60.0%为黑人，93.3%为母亲）有打鼾症状并被转介行整夜多导睡眠图（PSG）的儿童的父母进行半结构式访谈。父母描述了他们的孩子是如何被转介行 PSG 的，以及他们在整个检测过程中的看法和感受。父母还完成了一份 OSA 知识量表。使用描述性方法对访谈数据进行分析，并使用 NVivo 12 软件系统进行主题分析。
在 5 个类别（第一阶段；PSG 的促进因素和障碍；健康信息；医疗体验；父母体验）中确定了 21 个主题。受访者经历了多种 OSA 检测途径，超过一半的转诊是由父母的担忧（而非筛查）引起的。父母表示愿意采取任何必要的措施来帮助他们的孩子。父母描述了完成 PSG 的既有障碍，也有促进因素。父母观察到他们的孩子夜间和日间都有与 OSA 相关的症状，但直到检测过程的后期才将这些症状联系起来。参与者对 OSA 知识的了解程度不同，平均正确得分率为 56%（范围为 10%-90%正确）。
父母的经历突出了儿童 OSA 检测中医疗保健系统有效的和无效的方面。这意味着需要制定策略来促进及时检测，并向父母提供有关儿科 OSA 的准确信息。
Honaker SM、Gopalkrishnan A、Brann M、Wiehe S、Clark AA、Chung A. "这非常重要"：一项关于父母对儿童阻塞性睡眠呼吸暂停检测体验的定性研究。. 2022;18(8):1921-1931.
