Alic G. Shook, PhD, RN, is an Assistant Professor, College of Nursing, Seattle University, Seattle, Washington, USA. Susan E. Buskin, PhD, MPH, is an Affiliate Assistant Professor, Department of Epidemiology, University of Washington, Seattle, Washington, USA, and is an Epidemiologist, Public Health-Seattle & King County, Seattle, Washington, USA. Matthew Golden, MD, MPH, is a Director, Public Health-Seattle & King County HIV/STD Program, and is a Professor, Department of Medicine, University of Washington, Seattle, Washington, USA. Julia C. Dombrowski, MD, MPH, is a Deputy Director, Public Health-Seattle & King County HIV/STD Program, and is an Associate Professor, Department of Medicine, University of Washington, Seattle, Washington, USA. Joshua Herbeck, PhD, is an Assistant Professor, Department of Global Health, University of Washington, Seattle, Washington, USA. Richard J. Lechtenberg, MPH, is an Epidemiologist, Public Health-Seattle & King County, Seattle, Washington, USA. Roxanne Kerani, PhD, MPH, is a Research Assistant Professor, Department of Medicine, University of Washington, Seattle, Washington, USA.
J Assoc Nurses AIDS Care. 2022;33(3):270-282. doi: 10.1097/JNC.0000000000000308. Epub 2021 Oct 26.
Responding quickly to HIV outbreaks is one of four pillars of the U.S. Ending the HIV Epidemic (EHE) initiative. Inclusion of cluster detection and response in the fourth pillar of EHE has led to public discussion concerning bioethical implications of cluster detection and response and molecular HIV surveillance (MHS) among public health authorities, researchers, and community members. This study reports on findings from a qualitative analysis of interviews with community members and providers regarding their knowledge and perspectives of MHS. We identified five key themes: (a) context matters, (b) making sense of MHS, (c) messaging, equity, and resource prioritization, (d) operationalizing confidentiality, and (e) stigma, vulnerability, and power. Inclusion of community perspectives in generating innovative approaches that address bioethical concerns related to the use of MHS data is integral to ensure that widely accessible information about the use of these data is available to a diversity of community members and providers.
快速应对艾滋病病毒疫情是美国终结艾滋病疫情倡议的四大支柱之一。将集群检测和应对纳入终结艾滋病疫情倡议的第四大支柱，引发了公众对集群检测和应对以及公共卫生当局、研究人员和社区成员中分子 HIV 监测（MHS）的生物伦理含义的讨论。本研究报告了对社区成员和提供者进行的关于 MHS 知识和观点的定性分析的结果。我们确定了五个关键主题：(a) 背景很重要，(b) 理解 MHS，(c) 信息传递、公平和资源优先化，(d) 实施保密性，(e) 耻辱感、脆弱性和权力。将社区观点纳入到生成创新方法中，以解决与使用 MHS 数据相关的生物伦理问题，对于确保广泛提供有关使用这些数据的信息至关重要，这些信息应该提供给不同的社区成员和提供者。
