Saint John of God Hospital for Children, Barcelona, Spain.
School of Nursing, Pompeu Fabra University, Barcelona, Spain.
Eur J Oncol Nurs. 2022 Jun;58:102141. doi: 10.1016/j.ejon.2022.102141. Epub 2022 Apr 14.
To explore the experience of hospitalization among children and adolescents in treatment for acute lymphoblastic leukemia.
Qualitative phenomenological study informed by grounded theory and involving a convenience sample of children and adolescents attending an oncology unit in Spain. Data were collected through in-depth interviews with seven children aged between 9 and 18 years and analyzed using ATLAS.Ti 7.1. software in order to identify themes in the participants' narratives. Specific strategies were applied to support the validity and reliability of the findings.
The analysis of interviews revealed three themes in the participants' accounts of their experience of hospitalization: 1) It's normal to feel afraid when being treated in hospital; 2) Needle procedures are associated with pain, illness, and dying; and 3) Difficulty of expressing the suffering that is experienced in hospital.
A core experience among children and adolescents who are hospitalized for cancer treatment is the spiritual pain that results from feeling afraid. These fears are especially associated with the needle procedures that are routinely performed in the diagnosis and treatment of acute lymphoblastic leukemia.
探讨接受急性淋巴细胞白血病治疗的儿童和青少年住院经历。
本研究为基于扎根理论的定性现象学研究，便利选取西班牙某肿瘤病房的儿童和青少年为研究对象。通过对 7 名 9 至 18 岁儿童进行深入访谈收集资料，采用 ATLAS.ti 7.1 软件进行分析，以识别参与者叙述中的主题。采用特定策略来确保研究结果的有效性和可靠性。
对访谈的分析揭示了参与者对住院经历的三个主题：1）在医院接受治疗时感到害怕是正常的；2） 针管操作与疼痛、疾病和死亡有关；3）难以表达在医院所经历的痛苦。
癌症治疗住院儿童和青少年的核心体验是因恐惧而产生的精神痛苦。这些恐惧尤其与急性淋巴细胞白血病的诊断和治疗中常规进行的针管操作有关。
