年龄相关性黄斑变性患者教育材料的评估。
Assessment of patient education materials for age-related macular degeneration.
机构信息
Centre for Eye Health, The University of New South Wales Sydney, Kensington, New South Wales, Australia.
School of Optometry and Vision Science, The University of New South Wales Sydney, Kensington, New South Wales, Australia.
出版信息
Ophthalmic Physiol Opt. 2022 Jul;42(4):839-848. doi: 10.1111/opo.12991. Epub 2022 May 6.
PURPOSE
Age-related macular degeneration (AMD) is a leading cause of vision loss. It is helpful for patients living with AMD to understand the prognosis, risk factors and management of their condition. Online education materials are a popular and promising channel for conveying this knowledge to patients with AMD. However, the quality of these materials-particularly with respect to qualities such as 'understandability' and 'actionability'-is not yet known. This study assessed a collection of online materials about AMD based on these qualities of 'understandability' and 'actionability'.
METHODS
Online education materials about AMD were sourced through Google from six English-speaking nations: Australia, New Zealand, USA, UK, Ireland and Canada. Three Australian/New Zealand trained and registered optometrists participated in the grading of the 'understandability' and 'actionability' of online education materials using the Patient Education Materials Assessment Tool (PEMAT).
RESULTS
This study analysed a total of 75 online materials. The mean 'understandability' score was 74% (range: 38%-94%). The 'understandability' PEMAT criterion U11 (calling for a summary of the key points) scored most poorly across all materials. The mean 'actionability' score was 49% (range: 0%-83%). The 'actionability' PEMAT criterion A26 (using 'visual aids' to make instructions easier to act on) scored most poorly across all materials.
CONCLUSION
Most education materials about AMD are easy to understand, but difficult to act on, because of a lack of meaningful visual aids. We propose future enhancements to AMD education materials-including the use of summaries, visual aids and a habit tracker-to help patients with AMD improve their understanding of disease prognosis, risk factors and eye assessment schedule requirements.
目的
年龄相关性黄斑变性（AMD）是导致视力丧失的主要原因。了解 AMD 的预后、风险因素和管理方法对患者很有帮助。在线教育材料是向 AMD 患者传递这些知识的一种流行且有前途的渠道。然而，这些材料的质量——尤其是在“可理解性”和“可操作性”等方面——尚不清楚。本研究基于“可理解性”和“可操作性”这些质量评估了一系列关于 AMD 的在线材料。
方法
通过谷歌从六个英语国家（澳大利亚、新西兰、美国、英国、爱尔兰和加拿大）搜索有关 AMD 的在线教育材料。三名澳大利亚/新西兰培训和注册视光师使用患者教育材料评估工具（PEMAT）参与了在线教育材料“可理解性”和“可操作性”的分级。
结果
本研究共分析了 75 种在线材料。平均“可理解性”评分为 74%（范围：38%-94%）。所有材料中，“可理解性”PEMAT 标准 U11（要求总结要点）得分最差。平均“可操作性”评分为 49%（范围：0%-83%）。所有材料中，“可操作性”PEMAT 标准 A26（使用“视觉辅助”使说明更容易执行）得分最差。
结论
大多数 AMD 教育材料都很容易理解，但由于缺乏有意义的视觉辅助，很难付诸实践。我们提出了未来 AMD 教育材料的改进建议，包括使用摘要、视觉辅助和习惯跟踪器，以帮助 AMD 患者更好地理解疾病预后、风险因素和眼部评估计划要求。
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