Hansen Micaella Sotera, Tesfaye Wubshet, Sud Kamal, Sewlal Beena, Mehta Bharati, Kairaitis Lukas, Tarafdar Surjit, Chau Katrina, Razi Zaidi Syed Tabish, Castelino Ronald
Sydney Nursing School, Faculty of Medicine and Health, University of Sydney, Sydney, New South Wales, Australia.
Sydney Pharmacy School, The University of Sydney, Sydney, New South Wales, Australia.
J Ren Care. 2023 Jun;49(2):75-83. doi: 10.1111/jorc.12424. Epub 2022 May 8.
People with kidney failure face a multitude of psychosocial stressors that affect disease trajectory and health outcomes.
To investigate psychosocial factors affecting people with kidney failure before or at start of kidney replacement therapy (KRT) and kidney supportive and palliative care (KSPC) phases of illness and to explore role of social worker during the illness trajectory.
We conducted a secondary data audit of patients either before or at start of KRT (Phase 1) and at the KSPC (Phase 2) of illness and had psychosocial assessments between March 2012 and March 2020 in an Australian setting.
Seventy-nine individuals, aged 70 ± 12 years, had at least two psychosocial assessments, one in each of the two phases of illness. The median time between social worker evaluations in Phase 1 and Phase 2 was 522 (116-943) days. Adjustment to illness and treatment (90%) was the most prevalent psychosocial issue identified in Phase 1, which declined to 39% in Phase 2. Need for aged care assistance (7.6%-63%; p < 0.001) and carer support (7.6%-42%; p < 0.001) increased significantly from Phase 1 to Phase 2. There was a significant increase in psychosocial interventions by the social worker in Phase 2, including supportive counselling (53%-73%; p < 0.05), provision of education and information (43%-65%; p < 0.01), and referrals (28%-62%; p < 0.01).
Adults nearing or at the start of KRT experience immense psychosocial burden and adaptive demands that recognisably change during the course of illness. The positive role played by the nephrology social worker warrants further investigation.
肾衰竭患者面临众多影响疾病进程和健康结局的心理社会压力源。
调查在肾脏替代治疗(KRT)之前或开始时以及疾病的肾脏支持和姑息治疗(KSPC)阶段影响肾衰竭患者的心理社会因素,并探讨社会工作者在疾病进程中的作用。
我们对澳大利亚环境中在2012年3月至2020年3月期间接受心理社会评估的KRT之前或开始时(第1阶段)以及KSPC(第2阶段)的患者进行了二次数据审核。
79名年龄在70±12岁的个体至少接受了两次心理社会评估,在疾病的两个阶段各进行一次。第1阶段和第2阶段社会工作者评估之间的中位时间为522(116 - 943)天。适应疾病和治疗(90%)是第1阶段确定的最普遍的心理社会问题,在第2阶段降至39%。从第1阶段到第2阶段,对老年护理援助的需求(7.6% - 63%;p < 0.001)和护理者支持的需求(7.6% - 42%;p < 0.001)显著增加。第2阶段社会工作者的心理社会干预显著增加,包括支持性咨询(53% - 73%;p < 0.05)、提供教育和信息(43% - 65%;p < 0.01)以及转介(28% - 62%;p < 0.01)。
接近或刚开始接受KRT的成年人经历着巨大的心理社会负担和适应性需求,这些在疾病过程中会明显变化。肾脏科社会工作者所发挥的积极作用值得进一步研究。