de Graaf Everlien, Grant Matthew, van de Baan Frederieke, Ausems Marijke, Verboeket-Crul Cathelijne, Leget Carlo, Teunissen Saskia
Center of Expertise in Palliative Care, Julius Center for Health Sciences and Primary Care, 8124University Medical Center Utrecht, Utrecht, The Netherlands.
8106The Dutch College of General Practitioners, Palliative Care Physician, Utrecht, The Netherlands.
Am J Hosp Palliat Care. 2023 Jan;40(1):87-95. doi: 10.1177/10499091221100804. Epub 2022 May 9.
National clinical guidelines have been developed internationally to reduce variations in clinical practices and promote the quality of palliative care. In The Netherlands, there is considerable variability in the organisation and care processes of inpatient palliative care, with three types of hospices - Volunteer-Driven Hospices (VDH), Stand-Alone Hospices (SAH), and nursing home Hospice Units (HU). This study aims to examine clinical practices in palliative care through different hospice types and identify variations in care. Retrospective cohort study utilising clinical documentation review, including patients who received inpatient palliative care at 51 different hospices and died in 2017 or 2018. Care provision for each patient for the management of pain, delirium and palliative sedation were analysed according to the Dutch national guidelines. 412 patients were included: 112 patients who received treatment for pain, 53 for delirium, and 116 patients underwent palliative sedation therapy. Care was provided in accordance with guidelines for pain in 32%, 61% and 47% (P = .047), delirium in 29%, 78% and 79% (P = .0016), and palliative sedation in 35%, 63% and 42% (P = .067) of patients who received care in VDHs, SAHs and HUs respectively. When all clinical practices were considered, patient care was conducted according to the guidelines for 33% of patients in VDHs, 65% in SAHs, and 50% in HUs (P < .001). The data demonstrate that care practices are not standardised throughout Dutch hospices and exhibit significant variations between type of hospice.
国际上已制定国家临床指南,以减少临床实践中的差异并提高姑息治疗的质量。在荷兰,住院姑息治疗的组织和护理流程存在很大差异,有三种类型的临终关怀机构——志愿者驱动型临终关怀机构(VDH)、独立临终关怀机构(SAH)和养老院临终关怀单元(HU)。本研究旨在通过不同类型的临终关怀机构检查姑息治疗中的临床实践,并确定护理差异。采用回顾性队列研究,通过审查临床文档,纳入了在51家不同临终关怀机构接受住院姑息治疗并于2017年或2018年死亡的患者。根据荷兰国家指南,分析了每位患者在疼痛、谵妄和姑息性镇静管理方面的护理情况。共纳入412例患者:112例接受疼痛治疗,53例接受谵妄治疗,116例接受姑息性镇静治疗。分别在VDH、SAH和HU接受护理的患者中,按照疼痛指南提供护理的比例为32%、61%和47%(P = 0.047),按照谵妄指南提供护理的比例为29%、78%和79%(P = 0.0016),按照姑息性镇静指南提供护理的比例为35%、63%和42%(P = 0.067)。当考虑所有临床实践时,VDH中33%的患者、SAH中65%的患者和HU中50%的患者的护理是按照指南进行的(P < 0.001)。数据表明,荷兰各临终关怀机构的护理实践并不标准化,且不同类型的临终关怀机构之间存在显著差异。