School of Nursing, 12426Lanzhou University, Lanzhou, China.
3122Queen Margaret University Edinburgh, Scotland, UK.
Dementia (London). 2022 Jul;21(5):1669-1681. doi: 10.1177/14713012221089163. Epub 2022 May 10.
The aim of this study was to explore the lived experiences of a rural dwelling person living with dementia and his children. Using a phenomenological case study methodology, it aims to explore the health-related and personal dilemmas faced by multiple family members who provide care to a person living with dementia in a rural area in Henan, China. The study also investigates the barriers to quality dementia care in this kind of setting in order to inform the relevant stakeholders.
A phenomenological case study was designed for this study. The case that formed the focus of the research included a person living with dementia and multiple family members. Semi-structured in-depth interviews were undertaken with the five family members of the person living with dementia. Smith's interpretative phenomenological analysis was used for data analysis.
Three major themes were identified: (1) Dementia as a normal ageing process or a bad disease; (2) Commitment to and challenges of family caring and (3) Life in rural areas.
With the development of China's economy and its social-cultural changes, traditional home-based care provision in rural areas of China is being challenged for people with dementia who have multiple children. It suggests that there needs to be an exploration into providing more appropriate care for people with dementia living in rural settings. It also suggests that more support is required to increase dementia awareness and to improve the quality of life of people with dementia and their families in rural China.
本研究旨在探讨农村地区痴呆症患者及其子女的生活体验。采用现象学个案研究方法，旨在探讨为农村地区痴呆症患者提供护理的多名家庭成员所面临的与健康相关和个人困境，并调查在这种环境下提供优质痴呆症护理的障碍，以便为相关利益攸关方提供信息。
本研究设计了一项现象学个案研究。研究的焦点案例包括一名痴呆症患者和多名家庭成员。对该痴呆症患者的五名家庭成员进行了半结构化深度访谈。采用史密斯的解释现象学分析进行数据分析。
确定了三个主要主题：（1）痴呆症是正常衰老过程还是一种严重疾病；（2）家庭护理的承诺和挑战；（3）农村生活。
随着中国经济的发展和社会文化的变化，中国农村传统的家庭式护理方式正受到挑战，因为有多个子女的痴呆症患者需要提供更多的护理。这表明需要探索为农村地区的痴呆症患者提供更合适的护理。还需要更多的支持来提高农村地区痴呆症患者及其家庭的痴呆症意识，提高他们的生活质量。
