Department of Pediatric Nursing, Chronic Diseases (Home Care) Research Center and Autism Spectrum Disorders Research Center, 48430Department of Nursing, Hamadan University of Medical Sciences, Hamadan, Iran.
Department of Medical Surgical Nursing, School of Nursing and Midwifery, Mother and Child Care Research Center, Hamadan University of Medical Sciences, Hamadan, Iran.
Nurs Ethics. 2023 Feb;30(1):121-132. doi: 10.1177/09697330221085776. Epub 2022 May 12.
Maintaining patient dignity in a caregiving environment is one of the most important moral responsibilities for caregivers. Nonetheless, there are vulnerable groups, specifically teenagers, who in their final stages of life are prone to their dignity being threatened. Moreover, dignity is an abstract concept and there is no studies done on teenagers' dignity in the final stages of life available in Iran.: The purpose of this study is to describe the caregivers' experiences regarding teenagers' dignity in the final stages of life.: This study is a descriptive phenomenological qualitative research project. The data was collected using deep individual and semi-structured interviews as well as taking notes. The Colaizzi analysis method was used to analyze the data.: 22 caregivers working with teenagers in the final stages of life in a public health centers in Iran who had the criteria to enter the study were selected using a purposeful sampling method and invited to join the study from August 2018 to June 2019. The sampling continued until data saturation.: The findings of the present study were presented in the form of three main themes including "private," "respecting individual identity," and "attention to teenagers' needs" and an additional eight categories. The study's protocol was approved by the Research Ethics Committee of the Shiraz University of Medical Sciences and all ethical principles were followed throughout the study.: Based on the present study from the caregivers' point of view, teenagers in their final stages of life required to be cared for and taught in an environment that their privacy was maintained and their individual identity was respected as well as getting attention from the caregivers and companions. In such situations, the teenagers felt calm and their dignity was maintained; therefore, providing a cultural, professional, and organizational setting where all the components of maintaining dignity in teenagers are supported and prioritized is necessary.
在照护环境中维护患者尊严是照护者最重要的道德责任之一。然而，有些弱势群体，特别是青少年，在生命的最后阶段，他们的尊严容易受到威胁。此外，尊严是一个抽象的概念，伊朗没有关于青少年在生命最后阶段尊严的研究。本研究旨在描述照护者在青少年生命最后阶段对青少年尊严的体验。本研究是一项描述性现象学定性研究项目。使用深度个体和半结构化访谈以及笔记收集数据。使用 Colaizzi 分析方法对数据进行分析。通过目的抽样法选择了 22 名在伊朗公共卫生中心与青少年生命最后阶段合作的照护者，他们符合进入研究的标准，并邀请他们于 2018 年 8 月至 2019 年 6 月参加研究。抽样一直持续到数据饱和。本研究的结果以三个主题的形式呈现，包括“隐私”、“尊重个人身份”和“关注青少年需求”，以及另外八个类别。本研究的方案得到了 Shiraz 医科大学研究伦理委员会的批准，整个研究过程都遵循了所有伦理原则。从照护者的角度来看，本研究认为，青少年在生命的最后阶段需要在一个能够保护他们隐私、尊重他们个人身份、得到照护者和同伴关注的环境中得到照顾和教育。在这种情况下，青少年感到平静，他们的尊严得到维护；因此，有必要提供一个文化、专业和组织环境，支持和优先考虑维护青少年尊严的所有组成部分。
