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探讨姑息治疗住院病房终末期儿科患者的环境考虑因素:叙事性综述。

Exploring Environmental Considerations for Terminally Ill Pediatric Patients in Palliative Care Inpatient Units: A Narrative Review.

机构信息

School of Architecture, Design and Planning, The University of Sydney, Sydney, Australia.

出版信息

HERD. 2024 Oct;17(4):268-293. doi: 10.1177/19375867241271439. Epub 2024 Aug 19.

DOI:10.1177/19375867241271439
PMID:39161234
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11608520/
Abstract

The end-of-life experience is significantly influenced by the surrounding environment, emphasizing the importance of exploring built environmental factors in palliative care, especially for pediatric patients. As the majority of end-of-life individuals are elderly or adults, most studies have focused on the environment for this demographic. However, it is essential to recognize that children and adolescents may have distinct needs in this regard. This narrative review aims to explore the impact of the built environment on pediatric end-of-life patients in inpatient units within palliative care settings. A comprehensive search was conducted across four key databases (PubMed, MEDLINE, PsycINFO, and CINAHL) to identify relevant articles. The screening process commenced with an initial assessment of article titles and abstracts, followed by a thorough examination of full-text studies that met the inclusion criteria. Data synthesis involved thematic analysis facilitated by NVIVO software and informed by the findings extracted from selected literature. The review identified 22 studies meeting inclusion criteria, revealing key insights into environmental considerations in pediatric palliative care. Four themes emerged, highlighting the significance of activities and play environments, accommodation spaces for patients, supportive spaces for families, and outdoor and green spaces. Acknowledging limited research on architectural aspects and reliance on family and staff perspectives, future studies should prioritize understanding pediatric patients' perspectives, particularly adolescents. The study underscores the importance of enhancing environmental design in pediatric palliative care to meet the unique needs of patients and their families.

摘要

临终体验受到周围环境的显著影响,强调在姑息治疗中探索建筑环境因素的重要性,特别是对于儿科患者。由于大多数临终患者是老年人或成年人,因此大多数研究都集中在该人群的环境上。然而,必须认识到,儿童和青少年在这方面可能有独特的需求。本叙述性综述旨在探讨姑息治疗环境中住院病房的建筑环境对儿科临终患者的影响。在四个主要数据库(PubMed、MEDLINE、PsycINFO 和 CINAHL)中进行了全面检索,以确定相关文章。筛选过程从初步评估文章标题和摘要开始,然后对符合纳入标准的全文研究进行仔细检查。数据综合通过 NVIVO 软件进行主题分析,并根据从选定文献中提取的发现进行。该综述确定了符合纳入标准的 22 项研究,揭示了儿科姑息治疗中环境考虑的关键见解。出现了四个主题,强调了活动和游戏环境、患者住宿空间、家庭支持空间以及户外和绿色空间的重要性。认识到关于建筑方面的研究有限且依赖于家庭和工作人员的观点,未来的研究应优先了解儿科患者的观点,特别是青少年的观点。该研究强调了增强儿科姑息治疗中的环境设计以满足患者及其家庭独特需求的重要性。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/fbd9/11608520/49c87eb9f00c/10.1177_19375867241271439-fig5.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/fbd9/11608520/c586fb47c976/10.1177_19375867241271439-fig1.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/fbd9/11608520/86d0d5f3150f/10.1177_19375867241271439-fig2.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/fbd9/11608520/b739fee60a3e/10.1177_19375867241271439-fig3.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/fbd9/11608520/94c1d70d36c7/10.1177_19375867241271439-fig4.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/fbd9/11608520/49c87eb9f00c/10.1177_19375867241271439-fig5.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/fbd9/11608520/c586fb47c976/10.1177_19375867241271439-fig1.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/fbd9/11608520/86d0d5f3150f/10.1177_19375867241271439-fig2.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/fbd9/11608520/b739fee60a3e/10.1177_19375867241271439-fig3.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/fbd9/11608520/94c1d70d36c7/10.1177_19375867241271439-fig4.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/fbd9/11608520/49c87eb9f00c/10.1177_19375867241271439-fig5.jpg

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本文引用的文献

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照顾者对终末期青少年尊严的感知:一项现象学研究。
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