Fish Ellis C, Lloyd Anna
College of Medicine & Veterinary Medicine, The University of Edinburgh, Edinburgh, UK.
St Columba's Hospice, Education and Research, Edinburgh, UK.
Palliat Med. 2022 Jun;36(6):955-963. doi: 10.1177/02692163221088930. Epub 2022 May 12.
Palliative care professionals have had to adapt to rapidly changing COVID-19 restrictions with personal protective equipment and physical distancing measures impacting face-to-face communication with patients and relatives.
To explore the narratives of palliative care doctors working during the pandemic to understand their experiences at a personal and professional level.
In-depth narrative interviews were carried out via video call. Interviews were transcribed verbatim and analysed using a joint paradigmatic and narrative approach to elucidate common themes and closely explore individual narratives.
SETTING/PARTICIPANTS: Eight palliative care doctors who had worked on a hospice inpatient unit in the UK before and during the pandemic were recruited from two hospices in Scotland.
Three intersecting themes are described, the most significant being moral distress. Participants articulated a struggle to reconcile their moral convictions with the restrictions enforced, for example, wanting to provide support to patients through physical proximity but being unable to. To differing degrees, this resulted in internal conflict and emotional distress. Two further themes arose: the first concerned a loss of humanity in interaction and a striving to re-humanise communication through alternative means; the second being a change in staff morale as the pandemic progressed.
Restrictions had a considerable impact on palliative care doctors' ability to communicate with and comfort patients which led to moral distress and contributed to decreasing morale. Future research could explore moral distress in palliative care settings internationally during the pandemic with a view to compare the factors affecting how moral distress was experienced.
姑息治疗专业人员不得不适应快速变化的新冠疫情限制措施,个人防护装备和物理距离措施影响了与患者及亲属的面对面交流。
探讨在疫情期间工作的姑息治疗医生的经历,从个人和专业层面了解他们的体验。
通过视频通话进行深入的叙事访谈。访谈逐字转录,并采用联合范式和叙事方法进行分析,以阐明共同主题并深入探究个人叙事。
背景/参与者:从苏格兰的两家临终关怀医院招募了八名在疫情之前及期间在英国一家临终关怀住院部工作的姑息治疗医生。
描述了三个相互交织的主题,其中最显著的是道德困扰。参与者表达了在将自己的道德信念与强制实施的限制措施相协调时所面临的挣扎,例如,想通过身体靠近为患者提供支持,但却无法做到。在不同程度上,这导致了内心冲突和情绪困扰。还出现了另外两个主题:第一个涉及互动中人性的丧失以及努力通过其他方式重新赋予交流以人性;第二个是随着疫情的发展工作人员士气的变化。
限制措施对姑息治疗医生与患者沟通及安慰患者的能力产生了重大影响,这导致了道德困扰并促使士气下降。未来的研究可以在全球范围内探讨疫情期间姑息治疗环境中的道德困扰,以便比较影响道德困扰体验方式的因素。