Nguyen Tuan Anh, Tran Kham Van, Hinton Ladson, Roughead Elizabeth E, Esterman Adrian, Dang Thu Ha, Kim Giang Bao, Pham Diep Bich, Nguyen Huong Thi Diem, Crotty Maria, Kurrle Susan, Pham Thang, Pham Tuan Le, Hoang Phuong, Brodaty Henry
Social Gerontology Division, National Ageing Research Institute, Melbourne, VIC, Australia.
UniSA: Clinical and Health Sciences, University of South Australia, Adelaide, Australia.
Aging Ment Health. 2023 Feb;27(2):301-316. doi: 10.1080/13607863.2022.2056136. Epub 2022 May 12.
: This paper aimed to review and synthesise the qualitative research evidence on the experiences and perceptions of dementia in Vietnam and among the Vietnamese diaspora. Systematic searches were conducted in June 2019 using Medline, Embase, Emcare, PsycINFO and Cochrane electronic databases, as well as grey literature. Keywords and Medical Subject Headings [MeSH terms] for dementia and associated terms were combined with keywords for Vietnam and its provinces. Qualitative research articles published in English or Vietnamese were included to examine evidence on the life experiences of Vietnamese people with dementia using thematic analysis. Our searches resulted in 3,940 papers, from which 21 qualitative research studies were included for final analysis. The majority of research has not been undertaken in Vietnam but with the Vietnamese diaspora in Western countries and has taken a cultural perspective to analyses. Research in Western countries has focused on the need for culturally adapted and culturally sensitive models of care. Emerging themes about the life experiences of Vietnamese people with dementia identified from the studies included: many people do not have diagnostic terms for dementia but use the descriptive language of symptoms; stigma was a reported problem and on occasions can be observed in the descriptive language used for people with dementia; cultural and traditional values create both an opportunity and a barrier, supporting compassion, family care and relaxation, but creating barriers to accessing health services or long-term residential care. This is the first systematic review reporting qualitative evidence on the life experiences of people with dementia in Vietnam and among the Vietnamese diaspora. Future research is needed on the voice of people with dementia themselves and their caregivers particularly in Vietnam, and low and middle-income countries with regards to living with dementia, pathways to care from diagnosis, treatment, care and support, additional social care and preparedness for end of life care for people with dementia.
本文旨在回顾和综合关于越南及越南侨民对痴呆症的体验和认知的定性研究证据。2019年6月，我们使用Medline、Embase、Emcare、PsycINFO和Cochrane电子数据库以及灰色文献进行了系统检索。将痴呆症及其相关术语的关键词和医学主题词（MeSH词）与越南及其省份的关键词相结合。纳入以英文或越南文发表的定性研究文章，采用主题分析法来研究越南痴呆症患者生活经历的证据。我们的检索共得到3940篇论文，其中21项定性研究被纳入最终分析。大多数研究并非在越南进行，而是针对西方国家的越南侨民，并且采用了文化视角进行分析。西方国家的研究重点在于需要文化适应型和文化敏感型的护理模式。从这些研究中确定的关于越南痴呆症患者生活经历的新出现主题包括：许多人没有痴呆症的诊断术语，而是使用症状描述性语言；耻辱感是一个报告的问题，有时可以在用于描述痴呆症患者的语言中观察到；文化和传统价值观既创造了机会，也造成了障碍，支持同情心、家庭护理和放松，但在获得医疗服务或长期住院护理方面造成了障碍。这是第一项系统评价，报告了关于越南及越南侨民中痴呆症患者生活经历的定性证据。未来需要对痴呆症患者及其护理者的声音进行研究，特别是在越南以及中低收入国家，研究内容包括与痴呆症共存的情况、从诊断到治疗、护理和支持的护理途径、额外的社会护理以及痴呆症患者临终护理的准备情况。
