Ingham Institute for Applied Medical Research, Sydney, New South Wales, Australia.
South Western Sydney Clinical School, Faculty of Medicine and Health, University of New South Wales, Sydney, New South Wales, Australia.
Psychooncology. 2022 Sep;31(9):1474-1482. doi: 10.1002/pon.5962. Epub 2022 May 23.
Informal male caregivers of women with breast cancer (BC) have significant psychological, emotional, and social burdens that are inadequately addressed by current face-to-face interventions. Online interventions overcome barriers that limit engagement with face-to-face interventions. This study aimed to develop the contents of Care Assist, an online supportive care resource for male caregivers of BC patients, through expert consensus.
A Delphi study comprising two survey rounds and an expert consultation was conducted. In Round 1, experts in BC care rated the importance of 25 content items. In Round 2, they re-rated content items that failed to reach consensus (i.e. 80% agreement) in Round 1 or were newly developed. Free-text responses were also collected. During expert consultation, the resource was reviewed and revised for clarity. Iterative refinement followed all rounds. Quantitative data was analysed descriptively, and qualitative data was analysed using content analysis.
Twenty-two experts participated and reached consensus on 96% of items, with 217 comments provided on: (a) the perceived benefits of Care Assist to caregivers and care recipients, (b) recommendations of newly suggested content items, wording, and use of external links, and (c) concerns regarding information overload and need for tailoring. The expert consultation comments focused on clarifying scope, wording, and information tailoring.
The rigorous Delphi process resulted in the content for a comprehensive online supportive care intervention for male caregivers. Information overload can be minimised through self-identification of needs and utilisation of eHealth to personalise the resource for the heterogeneous male caregiver population.
女性乳腺癌（BC）患者的男性非正式照护者承担着重大的心理、情感和社会负担，但目前的面对面干预措施并不能充分解决这些负担。在线干预措施克服了限制与面对面干预措施接触的障碍。本研究旨在通过专家共识制定 CareAssist 的内容，CareAssist 是一种针对 BC 患者男性照护者的在线支持性护理资源。
采用两轮德尔菲研究和专家咨询进行研究。在第 1 轮中，BC 护理专家对 25 个内容项目的重要性进行了评分。在第 2 轮中，他们重新对第 1 轮中未达成共识（即 80%的一致性）的内容项目或新开发的内容项目进行了评分。还收集了自由文本的回复。在专家咨询期间，对资源进行了审查和修订以确保清晰易懂。所有轮次都进行了反复的改进。对定量数据进行描述性分析，对定性数据进行内容分析。
22 名专家参与了研究并就 96%的项目达成了共识，对以下方面提出了 217 条意见：（a）CareAssist 对照护者和照护对象的预期收益；（b）新提出的内容项目、措辞和外部链接的建议；（c）对信息过载和个性化信息需求的关注。专家咨询的意见主要集中在澄清范围、措辞和信息定制方面。
严格的德尔菲流程产生了针对男性照护者的全面在线支持性护理干预措施的内容。通过自我识别需求和利用电子健康技术为异质的男性照护者群体个性化资源，可以最大限度地减少信息过载。
