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Development and usability evaluation of an online self-management intervention for fear of cancer recurrence (iConquerFear).开发并评估在线癌症恐惧复发自我管理干预(iConquerFear)的可用性。
Psychooncology. 2020 Jan;29(1):98-106. doi: 10.1002/pon.5218. Epub 2019 Sep 10.
2
Impact of Internet-Based Interventions on Caregiver Mental Health: Systematic Review and Meta-Analysis.基于互联网的干预措施对照顾者心理健康的影响:系统评价与荟萃分析
J Med Internet Res. 2018 Jul 3;20(7):e10668. doi: 10.2196/10668.
3
The development of an online intervention (Care Assist) to support male caregivers of women with breast cancer: a protocol for a mixed methods study.开发一种在线干预措施(护理助手)以支持乳腺癌女性患者的男性护理者:一项混合方法研究的方案
BMJ Open. 2018 Feb 17;8(2):e019530. doi: 10.1136/bmjopen-2017-019530.
4
Web-Based Interventions to Improve Mental Health, General Caregiving Outcomes, and General Health for Informal Caregivers of Adults With Chronic Conditions Living in the Community: Rapid Evidence Review.基于网络的干预措施对社区中患有慢性病的成年人的非正式照料者心理健康、一般照料结果和总体健康的改善:快速证据综述
J Med Internet Res. 2017 Jul 28;19(7):e263. doi: 10.2196/jmir.7564.
5
The caregiver burden in male romantic partners of women with non-metastatic breast cancer: The protective role of couple satisfaction.非转移性乳腺癌女性的男性伴侣的照顾者负担:夫妻满意度的保护作用。
J Health Psychol. 2017 Nov;22(13):1668-1677. doi: 10.1177/1359105316633285. Epub 2016 Mar 3.
6
A Qualitative Investigation of Health Care Professionals', Patients' and Partners' Views on Psychosocial Issues and Related Interventions for Couples Coping with Cancer.一项关于医护人员、患者及其伴侣对心理社会问题以及夫妻应对癌症相关干预措施看法的定性研究。
PLoS One. 2015 Jul 29;10(7):e0133837. doi: 10.1371/journal.pone.0133837. eCollection 2015.
7
Using Web-based interventions to support caregivers of patients with cancer: a systematic review.使用基于网络的干预措施来支持癌症患者的护理人员:一项系统综述。
Oncol Nurs Forum. 2015 Mar;42(2):156-64. doi: 10.1188/15.ONF.156-164.
8
The person-based approach to intervention development: application to digital health-related behavior change interventions.基于个体的干预开发方法:在与数字健康相关的行为改变干预中的应用。
J Med Internet Res. 2015 Jan 30;17(1):e30. doi: 10.2196/jmir.4055.
9
Caregiver burden: a clinical review.照顾者负担:临床综述。
JAMA. 2014 Mar 12;311(10):1052-60. doi: 10.1001/jama.2014.304.
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Predictors of mood disorders in cancer patients' caregivers.癌症患者照顾者情绪障碍的预测因素。
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乳腺癌女性的男性照料者对在线干预的需求:一项定性研究

What Male Caregivers of Women With Breast Cancer Want in an Online Intervention: A Qualitative Study.

作者信息

Bamgboje-Ayodele Adeola, Levesque Janelle V, Gerges Martha, Girgis Afaf

机构信息

Centre for Oncology Education and Research Translation (CONCERT), Ingham Institute for Applied Medical Research, South Western Sydney Clinical School, University of New South Wales, Sydney, Australia.

School of Psychological Sciences, Faculty of Medicine, Nursing and Health Sciences, Monash University, Melbourne, Australia.

出版信息

J Patient Exp. 2020 Dec;7(6):1771-1777. doi: 10.1177/2374373520926098. Epub 2020 May 19.

DOI:10.1177/2374373520926098
PMID:33457642
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC7786699/
Abstract

The diversity in cancer caregiver responsibilities often leaves caregivers feeling ill-prepared for their role. To inform the development of an online caregiver training intervention, we examined the views of men caring for a woman with breast cancer on intervention mode, timing, and content preferences. Thirteen men participated in a qualitative interview. The findings reveal that an online intervention should include educational content and psychological support, be interactive and personalized, and be available from the point of diagnosis. There is encouraging support for an online caregiver training intervention that covers numerous topics and is available for men to tailor how they use the content based on their individual needs.

摘要

癌症护理者责任的多样性常常让护理者感觉对自己的角色准备不足。为了为在线护理者培训干预措施的开发提供参考,我们研究了照顾患有乳腺癌女性的男性对于干预模式、时间安排和内容偏好的看法。13名男性参与了定性访谈。研究结果表明,在线干预应包括教育内容和心理支持,具有互动性和个性化,并且从诊断时起即可使用。对于涵盖众多主题且可供男性根据个人需求定制内容使用方式的在线护理者培训干预措施,有令人鼓舞的支持。