Faculty of Applied Social Sciences and Law, Amsterdam University of Applied Sciences, Amsterdam, The Netherlands.
The University of Humanistic Studies, Utrecht, The Netherlands.
Health Soc Care Community. 2022 Nov;30(6):e4461-e4470. doi: 10.1111/hsc.13850. Epub 2022 May 16.
Treatment delay is the best explanation for the development of Korsakoff's syndrome. This study aimed to improve the patient pathway to reduce treatment delay and/or increase proper care on time for people with Korsakoff's syndrome by generating knowledge about the patient journey from the first moment that professional care was deemed necessary until the time of admission into a specialised residential facility for long-term care and treatment. This retrospective exploratory multiple-case study used an individual semi-structured interview approach in 14 cases, with a total of 56 respondents. Process mapping was used to understand the chronological patient journey and the multiple-case description was analysed by using the same question as used by the individual case studies: 'What risk factors do the respondents discuss that can explain treatment delay?'. The exploration of the data revealed three reoccurring cross-case risk factors to explain treatment delay or delay in receiving proper care on time. Our respondents discussed: the lack of knowledge of KS, the fragmentation of care/waiting lists and the lack of specialistic home care. We recommend the development of knowledge programmes about Korsakoff's syndrome for family carers, GP's, healthcare professionals in general hospitals and home care workers, which could play an essential role in reducing treatment delays for patients with KS. There is also a need to find ways to organise coordinated care for patients with KS. Further research into the role of Korsakoff case managers is recommended.
治疗延误是导致科萨科夫综合征发展的最佳解释。本研究旨在通过了解从专业护理开始到入住专门的长期护理和治疗机构的时间内患者的就诊过程，改善患者的就诊途径，以减少治疗延误和/或及时为科萨科夫综合征患者提供适当的护理。这项回顾性探索性多案例研究使用了 14 个案例的个体半结构化访谈方法，共有 56 名受访者。流程映射用于理解时间顺序的患者就诊过程，使用与个体案例研究相同的问题（即：“受访者讨论了哪些风险因素可以解释治疗延误？”）对多案例描述进行分析。对数据的探索揭示了三个反复出现的跨案例风险因素，以解释治疗延误或及时获得适当护理的延误。我们的受访者讨论了：对科萨科夫综合征缺乏了解、护理/等候名单的碎片化以及缺乏专门的家庭护理。我们建议为家庭护理人员、全科医生、综合医院的医疗保健专业人员和家庭护理人员制定关于科萨科夫综合征的知识计划，这可能在减少科萨科夫综合征患者的治疗延误方面发挥重要作用。还需要找到组织科萨科夫综合征患者协调护理的方法。建议进一步研究科萨科夫综合征个案经理的作用。
