van den Hooff Susanne L, Goossensen Anne
Inholland University of Applied Sciences, The Netherlands
University of Humanistic Studies, The Netherlands.
Nurs Ethics. 2015 May;22(3):377-88. doi: 10.1177/0969733014534876. Epub 2014 Jun 10.
This study explores experiences of patients suffering from Korsakoff's syndrome. It contributes to improved reflection on the value of patient knowledge.
An ethics of care perspective states the importance of moving to patients in their vulnerable state of being, and to figure out patients' individual needs necessary to provide good care. The information given by patients suffering from Korsakoff's syndrome might be mistaken, invented and even not true. The value of these patients' experiences and knowledge had not been researched to date.
Data from six in-depth interviews were analysed concurrently through the constant comparative method.
The principles of voluntariness, confidentiality and anonymity were respected during the research process.
Four important themes within patients' knowledge emerged: health condition, involuntary admission into the nursing home, the daily routine and interpretation of the caring abilities of healthcare professionals. The findings show that our respondents were able to provide a window into their inner perspective.
This study deepens our understanding of the value of patient knowledge in situations where patients see the world in a different manner as do healthcare professionals. The conversations revealed personal subjective knowledge which our respondents create and live by. Healthcare professionals are encouraged to discover and affirm the understandings of these patients, and not be prepossessed due to the diagnosis or general nursing home rules. Understanding patients' unique knowledge through appreciation of the complexity and richness of different views on the situation can assist to give a more humane response to individual needs and pain. Health staff in healthcare institutions are encouraged to evaluate the - unintended - effect of rigidly applied nursing home rules, and the government is challenged to rethink its policy about care, and provide more resources permitting relational care that nurtures the dignity of patients suffering from Korsakoff's syndrome.
本研究探讨科萨科夫综合征患者的经历。它有助于更好地反思患者知识的价值。
关怀伦理学视角强调关注处于脆弱状态的患者，并弄清楚提供优质护理所需的患者个体需求的重要性。科萨科夫综合征患者提供的信息可能有误、是编造的甚至不真实。迄今为止，这些患者的经历和知识的价值尚未得到研究。
通过持续比较法对六次深度访谈的数据进行同步分析。
研究过程中尊重自愿、保密和匿名原则。
患者知识中出现了四个重要主题：健康状况、非自愿入住疗养院、日常生活以及对医护人员护理能力的解读。研究结果表明，我们的受访者能够展现其内心视角。
本研究加深了我们对患者知识价值的理解，即在患者看待世界的方式与医护人员不同的情况下。这些对话揭示了受访者创造并赖以生存的个人主观知识。鼓励医护人员去发现并肯定这些患者的理解，而不是因诊断结果或疗养院的一般规定而有先入之见。通过认识到对这种情况的不同观点的复杂性和丰富性来理解患者独特的知识，有助于对个体需求和痛苦做出更人道的回应。鼓励医疗机构的医护人员评估严格执行疗养院规定的意外影响，同时促使政府重新思考其护理政策，并提供更多资源以实现能维护科萨科夫综合征患者尊严的关系性护理。
