St. Vincent's Hospital, Department of Medicine, University of Melbourne, Melbourne, Victoria, Australia.
Division of Nephrology, Hypertension and Kidney Transplantation, Department of Medicine, University of California Irvine School of Medicine, Orange, CA, USA.
Braz J Med Biol Res. 2022 May 16;55:e12161. doi: 10.1590/1414-431X2022e12161. eCollection 2022.
The high burden of kidney disease, global disparities in kidney care, and the poor outcomes of kidney failure place a growing burden on affected individuals and their families, caregivers, and the community at large. Health literacy is the degree to which individuals and organizations have, or equitably enable individuals to have, the ability to find, understand, and use information and services to make informed health-related decisions and actions for themselves and others. Rather than viewing health literacy as a patient deficit, improving health literacy lies primarily with health care providers communicating and educating effectively in codesigned partnership with those with kidney disease. For kidney policy makers, health literacy is a prerequisite for organizations to transition to a culture that places the person at the center of health care. The growing capability of and access to technology provides new opportunities to enhance education and awareness of kidney disease for all stakeholders. Advances in telecommunication, including social media platforms, can be leveraged to enhance persons' and providers' education. The World Kidney Day declares 2022 as the year of "Kidney Health for All" to promote global teamwork in advancing strategies in bridging the gap in kidney health education and literacy. Kidney organizations should work toward shifting the patient-deficit health literacy narrative to that of being the responsibility of health care providers and health policy makers. By engaging in and supporting kidney health-centered policy making, community health planning, and health literacy approaches for all, the kidney communities strive to prevent kidney diseases and enable living well with kidney disease.
肾脏疾病负担沉重、全球肾脏护理存在差异以及肾衰竭治疗效果不佳,这些问题都给患者及其家庭、照护者和整个社区带来了越来越大的负担。健康素养是指个人和组织具备或公平地使个人具备获取、理解和使用信息和服务的能力,以便为自己和他人做出明智的与健康相关的决策和采取行动。提高健康素养不应将其视为患者的缺陷,而主要在于医疗保健提供者与肾病患者合作设计并有效沟通和教育。对于肾脏疾病政策制定者而言,健康素养是组织向以患者为中心的医疗保健文化转变的前提。技术的不断发展和获取为提高所有利益相关者对肾脏疾病的教育和意识提供了新的机会。远程通信的进步,包括社交媒体平台,可以利用这些机会来加强患者和提供者的教育。世界肾脏日宣布 2022 年为“全民肾脏健康”年,以促进全球合作,推进肾脏健康教育和素养方面的战略。肾脏疾病组织应努力将以患者为缺陷的健康素养叙述转变为医疗保健提供者和肾脏疾病政策制定者的责任。通过参与和支持以肾脏健康为中心的政策制定、社区卫生规划以及全民健康素养方法,肾脏疾病社区努力预防肾脏疾病并使患者能够与肾脏疾病共存。