Duke University School of Medicine (C.E.C., D.C.A.), Division of Pulmonary and Critical Care Medicine, Durham, North Carolina, USA; Program to Support People and Enhance Recovery (ProSPER) (C.E.C., D.C.A.), Duke University, Duke University School of Medicine, Duke Cancer Institute, Durham North Carolina, USA.
Duke University School of Medicine (C.E.C., D.C.A.), Division of Pulmonary and Critical Care Medicine, Durham, North Carolina, USA; Program to Support People and Enhance Recovery (ProSPER) (C.E.C., D.C.A.), Duke University, Duke University School of Medicine, Duke Cancer Institute, Durham North Carolina, USA.
J Pain Symptom Manage. 2022 Jun;63(6):e579-e586. doi: 10.1016/j.jpainsymman.2022.03.012.
Palliative care research is deeply challenging for many reasons, not the least of which is the conceptual and operational difficulty of measuring outcomes within a seriously ill population such as critically ill patients and their family members. This manuscript describes how Randy Curtis and his network of collaborators successfully confronted some of the most vexing outcomes measurement problems in the field, and by so doing, have enhanced clinical care and research alike. Beginning with a discussion of the clinical challenges of measurement in palliative care, we then discuss a selection of the novel measures developed by Randy and his collaborators and conclude with a look toward the future evolution of these concepts. Randy and his foundational work, including both successes as well as the occasional near miss, have enriched and advanced the field as well as (immeasurably) impacted the work of so many others-including this manuscript's authors.
缓和医疗研究极具挑战性,原因有很多,其中最主要的是,在重症患者及其家属等重病人群中,衡量结果存在概念和操作上的困难。本文档介绍了 Randy Curtis 及其合作者网络如何成功应对该领域中一些最棘手的结果衡量问题,从而同时提高了临床护理和研究水平。本文首先讨论了缓和医疗中衡量的临床挑战,然后讨论了 Randy 及其合作者开发的一些新颖的衡量指标,最后展望了这些概念的未来发展。Randy 及其基础工作(包括成功和偶尔的险些错失)丰富并推进了该领域的发展,并且(无法衡量地)影响了许多其他人的工作,包括本文档的作者。