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乌干达西南部农村地区青少年和青年人群中与围产期获得性 HIV 共存的青少年过渡准备情况的观点:一项定性研究。

Perspectives About Transition Readiness Among Adolescents and Young People Living With Perinatally Acquired HIV in Rural, Southwestern Uganda: A Qualitative Study.

机构信息

Scholastic Ashaba, MBChB, MMED, PhD is a Senior Lecturer, Department of Psychiatry, Mbarara University of Science and Technology, Mbarara, Uganda . Brian C. Zanoni, MD, MPH, is an Assistant Professor, Departments of Medicine and Pediatric Infectious Diseases, Emory University, Atlanta, Georgia, USA and a Physician, Children's Healthcare of Atlanta, Atlanta, USA . Charles Baguma, B. SWASA, MPH, is a Project Manager, Global Health Collaborative, Mbarara University of Science and Technology, Mbarara, Uganda . Patricia Tushemereirwe, B. SWASA, is a Research Assistant, Global Health Collaborative, Mbarara University of Science and Technology, Mbarara, Uganda . Gabriel Nuwagaba, BA, is a Research Assistant, Global Health Collaborative, Mbarara University of Science and Technology, Mbarara, Uganda . Denis Nansera, MBChB, MMED, is a Consultant Pediatrician, Department of Pediatrics, Mbarara University of Science and Technology, Mbarara, Uganda . Samuel Maling, MBChB, MMED, MPH, is an Associate Professor, Department of Psychiatry, Mbarara University of Science and Technology, Mbarara, Uganda . Alexander C. Tsai, MD, is a Psychiatrist, Department of Psychiatry, Center for Global Health and Mongan Institute, Massachusetts General Hospital, Boston, Massachusetts, USA and Associate Professor, Harvard Medical School, Boston, Massachusetts, USA .

出版信息

J Assoc Nurses AIDS Care. 2022;33(6):613-623. doi: 10.1097/JNC.0000000000000342. Epub 2022 Jun 9.

DOI:10.1097/JNC.0000000000000342
PMID:35604846
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC9675875/
Abstract

Despite the availability of antiretroviral therapy, treatment outcomes are worse among adolescents and young adults living with perinatally acquired HIV (AYLPHIV). These disparities are magnified during the transition from pediatric to adult-based HIV care. We conducted in-depth interviews with AYLPHIV aged 15-24 years ( n = 30), their caregivers ( n = 10), and health care providers ( n = 10). All participants provided written assent and/or informed consent to enroll. Thematic content analysis was used to identify and analyze themes relevant to transition readiness. We grouped perspectives on transition readiness into 4 themes: preparation for transition, communication between stakeholders, social support, and timing of transition. AYLPHIV in sub-Saharan Africa who are facing a transition to adult HIV care should be equipped with relevant information about their illness, self-advocacy skills, and support from caregivers and health care providers to remain engaged in HIV care.

摘要

尽管有抗逆转录病毒疗法,但在感染艾滋病毒的青少年和青年中(AYLPHIV),治疗结果更差。在从儿科向成人 HIV 护理过渡期间,这些差异更加明显。我们对 15-24 岁的 AYLPHIV(n=30)、他们的照顾者(n=10)和医疗保健提供者(n=10)进行了深入访谈。所有参与者都提供了书面同意书和/或知情同意书以参与研究。采用主题内容分析来确定和分析与过渡准备相关的主题。我们将过渡准备的观点分为 4 个主题:过渡准备、利益相关者之间的沟通、社会支持和过渡时机。在撒哈拉以南非洲地区,面临向成人 HIV 护理过渡的 AYLPHIV 应该获得有关其疾病的相关信息、自我倡导技能以及来自照顾者和医疗保健提供者的支持,以保持参与 HIV 护理。

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