Mbarara University of Science and Technology, Plot 8-18, P. O.BOX 1410, Mbarara, Uganda.
Emory University School of Medicine, Atlanta, GA, USA.
AIDS Behav. 2023 Apr;27(4):1189-1198. doi: 10.1007/s10461-022-03856-6. Epub 2022 Sep 21.
Adolescents and young adults living with perinatally-acquired HIV (AYLPHIV) have poor outcomes along each step of the HIV care continuum due to challenges in seeking care and advocating for themselves. The transition from paediatric to adult HIV care is a particularly high-risk period for AYLPHIV in rural Uganda. We conducted in-depth interviews with AYLPHIV (n = 30), caregivers (n = 10), and healthcare providers (n = 10) to understand challenges facing AYLPHIV during the transition from paediatric to adult HIV care. Themes were identified by thematic content analysis. Transition-related challenges and fears included difficulty navigating the adult HIV clinic; loss of informational support; long wait times at the adult HIV clinic; lack of privacy, and fear of HIV status disclosure and stigma; and loss of support from caregivers, and health care providers. Before transitioning to adult HIV care, AYLPHIV should be adequately prepared and given appropriate information to help them navigate adult HIV care.
青少年和青年时期感染艾滋病毒（AYLPHIV）的患者由于在寻求护理和自我倡导方面存在挑战，在艾滋病毒护理连续体的每一步都面临较差的结果。从儿科到成人艾滋病毒护理的过渡是乌干达农村地区 AYLPHIV 的一个特别高风险时期。我们对 AYLPHIV（n=30）、照顾者（n=10）和医疗保健提供者（n=10）进行了深入访谈，以了解 AYLPHIV 在从儿科到成人艾滋病毒护理过渡期间面临的挑战。通过主题内容分析确定了主题。与过渡相关的挑战和担忧包括难以在成人艾滋病毒诊所就诊；失去信息支持；在成人艾滋病毒诊所等待时间长；缺乏隐私，担心艾滋病毒状况披露和耻辱感；以及失去照顾者和医疗保健提供者的支持。在过渡到成人艾滋病毒护理之前，应充分准备 AYLPHIV 并向他们提供适当的信息，以帮助他们在成人艾滋病毒护理中就诊。
