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我如何在照顾患有肿瘤和血液疾病的儿童时使用文献治疗。

How I approach the use of bibliotherapy in caring for children with oncologic and hematologic conditions.

机构信息

Department of Pediatrics, University of Nebraska, Omaha, Nebraska, USA.

National Center for Ethics in Healthcare, Washington, District of Columbia, USA.

出版信息

Pediatr Blood Cancer. 2022 Sep;69(9):e29780. doi: 10.1002/pbc.29780. Epub 2022 May 26.

DOI:10.1002/pbc.29780
PMID:35615889
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC9329224/
Abstract

Bibliotherapy utilizes storybook readings to foster expressive therapy for children. Storybooks represent a readily available yet underutilized support tool in pediatric hematology and oncology care settings. Storybooks can help explain a new diagnosis, treatment plan, body changes, and identity adjustment in a relatable way for patients to then have a safe space to process questions and emotions. This paper serves as a "how to" guide for clinicians to consider bibliotherapy for a patient, select suitable book options, and introduce and incorporate bibliotherapy as part of comprehensive care.

摘要

图书疗法利用故事书阅读来促进儿童的表达性治疗。故事书是儿科血液学和肿瘤学护理环境中一种现成但未充分利用的支持工具。故事书可以帮助患者以一种相关的方式解释新的诊断、治疗计划、身体变化和身份调整,然后为他们提供一个安全的空间来处理问题和情绪。本文旨在为临床医生提供一个“如何做”的指南,以考虑为患者提供图书疗法,选择合适的书籍,并将图书疗法作为综合护理的一部分进行介绍和实施。

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本文引用的文献

1
Helping young children understand inherited cancer predisposition syndromes using bibliotherapy.使用阅读疗法帮助幼儿理解遗传性癌症易感性综合征。
J Genet Couns. 2021 Aug;30(4):1119-1132. doi: 10.1002/jgc4.1396. Epub 2021 Mar 31.
2
Bibliotherapy and Bereavement: Harnessing the Power of Reading to Enhance Family Coping in Pediatric Palliative Care.文献疗法与丧亲之痛:利用阅读的力量增强儿科姑息治疗中家庭的应对能力。
J Soc Work End Life Palliat Care. 2020 Apr-Jun;16(2):85-98. doi: 10.1080/15524256.2020.1745728. Epub 2020 Apr 1.
3
Communication with children and adolescents about the diagnosis of a life-threatening condition in their parent.与儿童和青少年沟通,告知他们父母患有危及生命的疾病的诊断结果。
Lancet. 2019 Mar 16;393(10176):1164-1176. doi: 10.1016/S0140-6736(18)33202-1. Epub 2019 Mar 14.
4
Communication About Dying, Death, and Bereavement: A Systematic Review of Children's Literature.关于濒死、死亡和丧亲之痛的交流:儿童文学的系统综述
J Palliat Med. 2017 May;20(5):548-559. doi: 10.1089/jpm.2016.0494. Epub 2017 Mar 27.
5
Bringing Bibliotherapy for Children to Clinical Practice.将儿童阅读疗法应用于临床实践。
J Am Acad Child Adolesc Psychiatry. 2016 Jul;55(7):535-7. doi: 10.1016/j.jaac.2016.05.008.
6
Will talking about it make it worse? Facilitating family conversations in the context of chronic and life-shortening illness.谈论它会让情况变得更糟吗?在慢性和危及生命的疾病背景下促进家庭对话。
J Fam Nurs. 2014 May;20(2):151-63. doi: 10.1177/1074840714530087. Epub 2014 Apr 4.
7
Bibliotherapy: a strategy to help students with bullying.阅读疗法:一种帮助受欺凌学生的策略。
J Sch Nurs. 2004 Jun;20(3):127-33. doi: 10.1177/10598405040200030201.
8
Death themes in literature for children ages 3-8.适合3至8岁儿童的文学作品中的死亡主题。
J Sch Health. 1993 Feb;63(2):86-90. doi: 10.1111/j.1746-1561.1993.tb06086.x.