White Dawn R, Palmieri Patrick Albert
College of Graduate Health Studies, A.T. Still University, 800 W. Jefferson Street, Kirksville, MO 63501, USA.
Department of Health Sciences, Centura College, 932 Ventures Way, Chesapeake, VA 23320, USA.
J Pers Med. 2022 Apr 20;12(5):659. doi: 10.3390/jpm12050659.
Parkinson's disease (PD) is an emerging pandemic caused by aging, longevity, and industrialization. Most people diagnosed with PD initially experience mild symptoms, but over time the symptoms become debilitating. Given their intensive care requirement, most married people living with PD receive care from their spouses; most are female caregivers. Because caregiving is hard work with long hours, caregivers experience stress, fatigue, and depression, often leading to exhaustion and burnout. The purpose of this descriptive phenomenological study is to understand the lived experience of women caregivers of husbands living with PD. As part of this study protocol, women caring at home for their husbands diagnosed with PD will be purposely recruited from the Colorado Parkinson Foundation. Semi-structured interviews will be conducted by Zoom© until data saturation is achieved. Colaizzi's seven-step process will be used to analyze the data in Atlas.ti. Strategies have been incorporated into the study protocol to maximize trustworthiness and to insure methodological rigor. The study will be reported using recommendations from the Standards for Reporting Qualitative Research and the Consolidated Criteria for Reporting Qualitative Research. Findings from this study may guide intervention development to improve the caregiving experience and to inform clinical practice guidelines for health care professionals.
帕金森病（PD）是一种由老龄化、长寿和工业化引发的正在出现的流行病。大多数被诊断为帕金森病的人最初会经历轻微症状，但随着时间推移，症状会变得使人衰弱。鉴于他们对重症护理的需求，大多数患有帕金森病的已婚人士由其配偶照顾；大多数是女性照顾者。由于照顾工作辛苦且耗时长久，照顾者会经历压力、疲劳和抑郁，常常导致精疲力竭和职业倦怠。这项描述性现象学研究的目的是了解患有帕金森病的丈夫的女性照顾者的生活经历。作为本研究方案的一部分，将从科罗拉多帕金森基金会特意招募在家中照顾被诊断患有帕金森病的丈夫的女性。将通过Zoom©进行半结构化访谈，直至达到数据饱和。将使用科莱齐的七步法在Atlas.ti中分析数据。研究方案中已纳入相关策略，以最大限度地提高可信度并确保方法的严谨性。本研究将根据定性研究报告标准和定性研究报告综合标准的建议进行报告。本研究的结果可能会指导干预措施的制定，以改善照顾体验，并为医疗保健专业人员的临床实践指南提供参考。
