Moriarty Helene, Bunting-Perry Lisette, Robinson Joanne P, Bradway Christine W
J Obstet Gynecol Neonatal Nurs. 2016 Sep-Oct;45(5):737-48. doi: 10.1016/j.jogn.2016.04.008. Epub 2016 Aug 10.
To describe the symptoms, bother, impact, and attribution of lower urinary tract symptoms (LUTS) and management strategies from the perspective of the spouse caregiver.
A qualitative descriptive design with semistructured interviews was guided by the Theory of Unpleasant Symptoms and family systems theory.
Women were recruited from a Parkinson's Center at a Veterans Affairs hospital in the northeastern part of the United States. Their veteran husbands received care for Parkinson's disease at the center.
Participants were 15 female spouse caregivers of men with Parkinson's disease and associated LUTS.
Purposive sampling was used to select caregiver participants for audiotaped interviews. Semistructured interviews were conducted with the participants. A directed content analysis was used to code transcribed interviews and field notes.
The cognitive, affective, and behavioral dimensions of caring for a spouse with LUTS were identified. Participants were knowledgeable about the direct effect of Parkinson's disease on the bladder. Their affective responses included experiencing bother, emotional distress from the impact of LUTS on their lives, and empathy for their husbands. Participants tried many behavioral strategies to manage LUTS but received limited professional assistance for daily LUTS management.
Multidisciplinary, patient- and family-centered approaches that provide education, treatment, and support are needed to promote better management of LUTS, maintain patient dignity, and reduce burden for the patient and family.
从配偶照顾者的角度描述下尿路症状（LUTS）的症状、困扰、影响、归因及管理策略。
采用基于不愉快症状理论和家庭系统理论的半结构化访谈进行定性描述性设计。
从美国东北部一家退伍军人事务医院的帕金森病中心招募女性。她们的退伍军人丈夫在该中心接受帕金森病治疗。
15名患有帕金森病及相关LUTS男性的女性配偶照顾者。
采用目的抽样法选择照顾者参与者进行录音访谈。对参与者进行半结构化访谈。采用定向内容分析法对转录的访谈内容和现场笔记进行编码。
确定了照顾患有LUTS配偶的认知、情感和行为维度。参与者了解帕金森病对膀胱的直接影响。她们的情感反应包括感到困扰、LUTS对其生活影响所带来的情绪困扰以及对丈夫的同理心。参与者尝试了许多行为策略来管理LUTS，但在日常LUTS管理方面获得的专业帮助有限。
需要多学科、以患者和家庭为中心的方法，提供教育、治疗和支持，以促进更好地管理LUTS，维护患者尊严，减轻患者和家庭的负担。
