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利用在线新生儿筛查教育资源对准父母进行教育:公平性的改善。

Use of Online Newborn Screening Educational Resources for the Education of Expectant Parents: An Improvement in Equity.

作者信息

Thompson Kristen, Atkinson Shelby, Kleyn Mary

机构信息

Michigan Department of Health and Human Services, Lansing, MI 48933, USA.

出版信息

Int J Neonatal Screen. 2022 May 11;8(2):34. doi: 10.3390/ijns8020034.

DOI:10.3390/ijns8020034
PMID:35645288
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC9149957/
Abstract

Educating parents about the newborn screening (NBS) process is critical in ensuring that families are aware of their child's NBS, which could contribute to better outcomes for the baby and experiences for the family. Successful education efforts result in expecting parents understanding the importance of NBS, feeling comfortable with the NBS process, and being aware of their choices after NBS is complete. Educating parents prenatally is challenging for many NBS programs for a variety of reasons. The COVID-19 pandemic added additional barriers to NBS programs' ability to educate parents prenatally about NBS. By initiating a department-wide partnership among other programs with a similar target audience, Michigan's NBS Program was able to host a virtual baby fair. Since the inaugural event, Michigan's NBS Program has hosted seven virtual fairs with 15 participating programs. A total of 692 participants registered for the baby fair and received a resource packet, over 157 participants joined one of the live presentations, and 211 have viewed the YouTube videos of recorded fairs. Virtual baby fairs are a cost-effective and convenient approach to education that could be implemented in any NBS program to educate parents prenatally about NBS.

摘要

让家长了解新生儿筛查(NBS)流程对于确保家庭知晓其孩子的NBS情况至关重要,这有助于为婴儿带来更好的结果,并提升家庭体验。成功的教育工作能使准父母理解NBS的重要性,对NBS流程感到安心,并在NBS完成后了解自己的选择。由于多种原因,对许多NBS项目而言,在产前对家长进行教育具有挑战性。新冠疫情给NBS项目在产前对家长进行NBS教育的能力增加了额外障碍。通过在其他面向类似目标受众的项目之间建立全部门合作伙伴关系,密歇根州的NBS项目得以举办一场虚拟婴儿博览会。自首届活动以来,密歇根州的NBS项目已举办了七场虚拟博览会,有15个参与项目。共有692名参与者注册参加了婴儿博览会并收到了一份资料包,超过157名参与者参加了其中一场现场演示,211人观看了录制的博览会YouTube视频。虚拟婴儿博览会是一种经济高效且便捷的教育方式,可在任何NBS项目中实施,以便在产前对家长进行NBS教育。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/83a6/9149957/de03140d8740/IJNS-08-00034-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/83a6/9149957/de03140d8740/IJNS-08-00034-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/83a6/9149957/de03140d8740/IJNS-08-00034-g001.jpg

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本文引用的文献

1
Assessing the newborn screening education needs of families living in medically underserved areas.评估医疗资源不足地区家庭的新生儿筛查教育需求。
J Genet Couns. 2020 Aug;29(4):658-667. doi: 10.1002/jgc4.1252. Epub 2020 Mar 30.
2
Newborn Hearing Screening: Early Education = More Satisfied Mothers.新生儿听力筛查:早期教育=更满意的母亲。
Am J Audiol. 2019 Sep 13;28(3):617-627. doi: 10.1044/2019_AJA-19-0007. Epub 2019 Jul 3.
3
Assessment of knowledge, attitudes and practices towards newborn screening for congenital hypothyroidism before and after a health education intervention in pregnant women in a hospital setting in Pakistan.
巴基斯坦某医院对孕妇进行健康教育干预前后,对先天性甲状腺功能减退症新生儿筛查的知识、态度和行为的评估。
Int Health. 2018 Mar 1;10(2):100-107. doi: 10.1093/inthealth/ihx069.
4
Provision of information about newborn screening antenatally: a sequential exploratory mixed-methods project.新生儿筛查的产前信息提供:一项序贯探索性混合方法项目。
Health Technol Assess. 2017 Oct;21(55):1-240. doi: 10.3310/hta21550.
5
An evaluation of pregnant women's knowledge and attitudes about newborn bloodspot screening.对孕妇关于新生儿血斑筛查的知识和态度的评估。
Midwifery. 2017 Feb;45:21-27. doi: 10.1016/j.midw.2016.11.007. Epub 2016 Nov 21.
6
Prenatal Education of Parents About Newborn Screening and Residual Dried Blood Spots: A Randomized Clinical Trial.针对父母的新生儿筛查及残留干血斑产前教育:一项随机临床试验。
JAMA Pediatr. 2016 Jun 1;170(6):543-9. doi: 10.1001/jamapediatrics.2015.4850.
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Newborn screening and the obstetrician.新生儿筛查与产科医生。
Obstet Gynecol. 2012 Oct;120(4):908-17. doi: 10.1097/AOG.0b013e31826b2f03.
8
Michigan BioTrust for Health: public support for using residual dried blood spot samples for health research.密歇根健康生物信托基金:公众对使用残余干血斑样本进行健康研究的支持。
Public Health Genomics. 2012;15(3-4):146-55. doi: 10.1159/000336565. Epub 2012 Apr 4.
9
State laws regarding the retention and use of residual newborn screening blood samples.州法律对保留和使用新生儿筛查剩余血样的规定。
Pediatrics. 2011 Apr;127(4):703-12. doi: 10.1542/peds.2010-1468. Epub 2011 Mar 28.