Åke Sabina, Hartelius Lena, Jakola Asgeir S, Antonsson Malin
Speech and Language Pathology Unit, Department of Health and Rehabilitation, Institute of Neuroscience and Physiology, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden.
Institute of Neuroscience and Physiology, Section of clinical neuroscience, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden.
Neuropsychol Rehabil. 2023 Aug;33(7):1225-1261. doi: 10.1080/09602011.2022.2080720. Epub 2022 Jun 2.
The purpose of this study was to explore how persons having received various treatments for glioma, a type of brain tumour, experience their language, speech, and communication in everyday life. Twelve persons with low-grade glioma and one with high-grade glioma who had undergone tumour resection in 2014-2016 in different tumour locations were interviewed using a semi-structured protocol. The video-recorded interviews were transcribed and analysed using qualitative content analysis, which revealed three manifest categories, nine sub-categories and one latent theme. Participants experienced changed communication that affected word finding, motor speech and comprehension. They also expressed how communication required a greater effort; time and context were important factors and participants felt frustrated with their communication. Further, they were dealing with changes and used multiple strategies to manage communication. For most participants it did not affect their everyday life, but it was not like before. In addition, participants adapted their way of living to manage illness-related problems. Uncertainty was a latent theme which emanated from the participants' illness experience, reflecting how living with a slow-growing brain tumour affects life-decisions and views of perceived symptoms. Discussion of how results can be interpreted in relation to previous research and health care are included.
Eur J Oncol Nurs. 2015-8
Clin Linguist Phon. 2024-4-2
JBI Database System Rev Implement Rep. 2015-1
Turk Psikiyatri Derg. 2022
Int J Lang Commun Disord. 2018-5
Nurs Ethics. 2019-7-18
Neurooncol Pract. 2025-1-9
Cureus. 2024-12-8
Cancers (Basel). 2024-11-27
Front Oncol. 2024-10-29
Neurooncol Pract. 2024-1-29