Tang Wei, Inzerillo Sean, Weiner Julia, Khalili Leila, Barasch Julia, Gartshteyn Yevgeniya, Dall'Era Maria, Aranow Cynthia, Mackay Meggan, Askanase Anca
Division of Rheumatology, Columbia University Irving Medical Center, New York, NY, United States.
Columbia University Vagelos College of Physicians and Surgeons, New York, NY, United States.
Front Med (Lausanne). 2022 May 20;9:876835. doi: 10.3389/fmed.2022.876835. eCollection 2022.
The pandemic disrupted the care of patients with rheumatic diseases; difficulties in access to care and its psychological impact affected quality of life. Telemedicine as an alternative to traditional face-to-face office visits has the potential to mitigate this impact.
To evaluate patient and provider experience with telemedicine and its effect on care.
We surveyed patients with rheumatic diseases and their rheumatology providers. The surveys were conducted in 2020 and repeated in 2021. We assessed data on quality of care and health-related quality of life.
Hundred patients and 17 providers responded to the survey. Patients reported higher satisfaction with telemedicine in 2021 compared to 2020 (94 vs. 84%), felt more comfortable with (96 vs. 86%), expressed a stronger preference for (22 vs. 16%), and higher intention to use telemedicine in the future (83 vs. 77%); patients thought physicians were able to address their concerns. While providers' satisfaction with telemedicine increased (18-76%), 14/17 providers believed that telemedicine visits were worse than in-person visits. There were no differences in annualized office visits and admissions. Mean EQ-5D score was 0.74, lower than general population (0.87) but equivalent to a subset of patients with SLE (0.74).
Our data showed a high level of satisfaction with telemedicine. The lower rheumatology provider satisfaction raises concern if telemedicine constitutes an acceptable alternative to in-person care. The stable number of office visits, admissions, and the similar quality of life to pre-pandemic level suggest effective management of rheumatic diseases using telemedicine/in-person hybrid care.
疫情扰乱了风湿病患者的护理;获得护理的困难及其心理影响影响了生活质量。远程医疗作为传统面对面门诊的替代方式,有可能减轻这种影响。
评估患者和医疗服务提供者对远程医疗的体验及其对护理的影响。
我们对风湿病患者及其风湿病医疗服务提供者进行了调查。调查于2020年进行,并于2021年重复。我们评估了护理质量和健康相关生活质量的数据。
100名患者和17名医疗服务提供者回复了调查。与2020年相比,患者在2021年对远程医疗的满意度更高(94%对84%),感觉更舒适(96%对86%),更倾向于选择(22%对16%),并且未来使用远程医疗的意愿更高(83%对77%);患者认为医生能够解决他们的担忧。虽然医疗服务提供者对远程医疗的满意度有所提高(18%至76%),但17名医疗服务提供者中有14名认为远程医疗就诊比面对面就诊更差。年度门诊就诊次数和住院次数没有差异。EQ-5D平均得分为0.74,低于普通人群(0.87),但与一部分系统性红斑狼疮患者相当(0.74)。
我们的数据显示对远程医疗的满意度很高。如果远程医疗要成为面对面护理的可接受替代方式,较低的风湿病医疗服务提供者满意度令人担忧。门诊就诊次数、住院次数稳定,生活质量与疫情前水平相似,这表明使用远程医疗/面对面混合护理对风湿病进行了有效管理。