Centre for Health Services Research, Faculty of Medicine, the University of Queensland, Brisbane, Australia.
UQ Centre for Clinical Research, Faculty of Medicine, the University of Queensland, Brisbane, Australia.
Clin Gerontol. 2023 Jul-Sep;46(4):511-524. doi: 10.1080/07317115.2022.2085643. Epub 2022 Jun 7.
Decline in language and cognitive functioning often deprives people living with moderate-to-severe dementia of self-reporting their quality of life (QoL) on the written and verbal formats of questionnaires. This systematic review aimed to evaluate the effectiveness of pictorial tools as an alternative method for enabling people living with dementia to self-report their QoL.
PubMed, PsycINFO, CINAHL, and EMBASE were searched. Primary research studies reporting on information elicitation from people living with dementia through pictures were deemed eligible. Six studies satisfied the inclusion criteria. Methodological quality of the studies was evaluated through Downs and Black checklist. Data was extracted according to population, intervention, comparator, and outcomes (PICO) and results were summarized and supplemented by narrative synthesis.
Compared to usual communication methods, pictorial tools were found to have a superior effect on comprehension of conversations and decision-making abilities, minimal effect on preference consistency, and an undeterminable effect on discourse features.
There is consistent evidence that pictures enhance comprehension and might facilitate decision-making abilities.
QoL information can be elicited more effectively through pictorial tools. Future studies warrant development of pictorial versions of standardized QoL tools which will assist the inclusion of people living with severe dementia.
语言和认知功能的衰退常常使患有中重度痴呆症的人无法通过书面和口头问卷形式自我报告生活质量(QoL)。本系统评价旨在评估图片工具作为一种替代方法,使痴呆症患者能够自我报告其 QoL 的有效性。
检索了 PubMed、PsycINFO、CINAHL 和 EMBASE。符合条件的研究是报告通过图片从痴呆症患者那里获取信息的原始研究。有 6 项研究符合纳入标准。通过 Downs 和 Black 清单评估了研究的方法学质量。根据人群、干预、对照和结局(PICO)提取数据,并通过叙述性综合进行总结和补充。
与常规沟通方法相比,图片工具在理解对话和决策能力方面的效果更好,对偏好一致性的影响最小,对话语特征的影响不确定。
有一致的证据表明,图片可以提高理解能力,并可能有助于决策能力。
通过图片工具可以更有效地获取 QoL 信息。未来的研究需要开发标准化 QoL 工具的图片版本,以帮助包括严重痴呆症患者。