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1
The National Audit of Primary Biliary Cholangitis (PBC) in the United Kingdom: Defining the Audit Dataset and Data Collection System.英国原发性胆汁性胆管炎(PBC)国家审计:定义审计数据集和数据收集系统。
Cureus. 2022 Jun 2;14(6):e25609. doi: 10.7759/cureus.25609. eCollection 2022 Jun.
2
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JHEP Rep. 2023 Oct 16;6(1):100931. doi: 10.1016/j.jhepr.2023.100931. eCollection 2024 Jan.
3
Setting Up a Local Registry to Improve the Care of Patients With Primary Biliary Cholangitis.建立本地登记系统以改善原发性胆汁性胆管炎患者的护理。
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Widespread gaps in the quality of care for primary biliary cholangitis in UK.英国原发性胆汁性胆管炎护理质量存在广泛差距。
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JGH Open. 2019 Jul 22;4(2):132-139. doi: 10.1002/jgh3.12223. eCollection 2020 Apr.
7
[Guidelines on the diagnosis and management of primary biliary cholangitis (2021)].[原发性胆汁性胆管炎的诊断和管理指南(2021年)]
Zhonghua Gan Zang Bing Za Zhi. 2022 Mar 20;30(3):264-275. doi: 10.3760/cma.j.cn112138-20211112-00794-1.
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Diagnosis and Management of Primary Biliary Cholangitis.原发性胆汁性胆管炎的诊断与治疗。
Am J Gastroenterol. 2019 Jan;114(1):48-63. doi: 10.1038/s41395-018-0390-3.
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Clinical application of the GLOBE and United Kingdom-primary biliary cholangitis risk scores in a trial cohort of patients with primary biliary cholangitis.全球肝脏疾病评分(GLOBE)和英国原发性胆汁性胆管炎风险评分在原发性胆汁性胆管炎患者试验队列中的临床应用
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Twenty-Year Comparative Analysis of Patients With Autoimmune Liver Diseases on Transplant Waitlists.20 年自身免疫性肝病患者在肝移植等待名单上的比较分析。
Clin Gastroenterol Hepatol. 2018 Feb;16(2):278-287.e7. doi: 10.1016/j.cgh.2017.09.062. Epub 2017 Oct 6.

引用本文的文献

1
Critical shortfalls in the management of PBC: Results of a UK-wide, population-based evaluation of care delivery.原发性胆汁性胆管炎管理中的严重不足:一项基于全英国人口的医疗服务提供评估结果
JHEP Rep. 2023 Oct 16;6(1):100931. doi: 10.1016/j.jhepr.2023.100931. eCollection 2024 Jan.

本文引用的文献

1
Widespread gaps in the quality of care for primary biliary cholangitis in UK.英国原发性胆汁性胆管炎护理质量存在广泛差距。
Frontline Gastroenterol. 2021 Mar 9;13(1):32-38. doi: 10.1136/flgastro-2020-101713. eCollection 2022.
2
PBC-10: a short quality of life measure for clinical screening in primary biliary cholangitis.PBC-10:原发性胆汁性胆管炎临床筛查的简短生活质量衡量标准。
Aliment Pharmacol Ther. 2019 Dec;50(11-12):1223-1231. doi: 10.1111/apt.15554. Epub 2019 Oct 30.
3
Pretreatment prediction of response to ursodeoxycholic acid in primary biliary cholangitis: development and validation of the UDCA Response Score.原发性胆汁性胆管炎患者对熊去氧胆酸应答的预处理预测:UDCA 应答评分的建立和验证。
Lancet Gastroenterol Hepatol. 2018 Sep;3(9):626-634. doi: 10.1016/S2468-1253(18)30163-8. Epub 2018 Jul 13.
4
The British Society of Gastroenterology/UK-PBC primary biliary cholangitis treatment and management guidelines.英国胃肠病学会/英国原发性胆汁性胆管炎治疗和管理指南。
Gut. 2018 Sep;67(9):1568-1594. doi: 10.1136/gutjnl-2017-315259. Epub 2018 Mar 28.
5
EASL Clinical Practice Guidelines: The diagnosis and management of patients with primary biliary cholangitis.EASL 临床实践指南:原发性胆汁性胆管炎患者的诊断和管理。
J Hepatol. 2017 Jul;67(1):145-172. doi: 10.1016/j.jhep.2017.03.022. Epub 2017 Apr 18.
6
A Placebo-Controlled Trial of Obeticholic Acid in Primary Biliary Cholangitis.奥贝胆酸治疗原发性胆汁性胆管炎的安慰剂对照临床试验。
N Engl J Med. 2016 Aug 18;375(7):631-43. doi: 10.1056/NEJMoa1509840.
7
The UK-PBC risk scores: Derivation and validation of a scoring system for long-term prediction of end-stage liver disease in primary biliary cholangitis.英国原发性胆汁性胆管炎风险评分:原发性胆汁性胆管炎终末期肝病长期预测评分系统的推导与验证
Hepatology. 2016 Mar;63(3):930-50. doi: 10.1002/hep.28017. Epub 2015 Oct 20.
8
Elective liver transplant list mortality: development of a United Kingdom end-stage liver disease score.择期肝移植名单死亡率:英国终末期肝病评分的制定。
Transplantation. 2011 Aug 27;92(4):469-76. doi: 10.1097/TP.0b013e318225db4d.
9
Primary biliary cirrhosis.原发性胆汁性肝硬化。
Lancet. 2011 May 7;377(9777):1600-9. doi: 10.1016/S0140-6736(10)61965-4. Epub 2011 Apr 28.
10
Risk factors and comorbidities in primary biliary cirrhosis: a controlled interview-based study of 1032 patients.原发性胆汁性肝硬化的危险因素和共病:一项基于对照访谈的1032例患者研究。
Hepatology. 2005 Nov;42(5):1194-202. doi: 10.1002/hep.20907.

英国原发性胆汁性胆管炎(PBC)国家审计:定义审计数据集和数据收集系统。

The National Audit of Primary Biliary Cholangitis (PBC) in the United Kingdom: Defining the Audit Dataset and Data Collection System.

作者信息

Burke Laura, Flack Steve, Jones Rebecca, Aspinall Richard J, Thorburn Douglas, Jones David E, Braniff Conor, Thain Collette, Yeoman Andrew, Leithead Joanna A, Trivedi Palak J, Mells George, Alrubaiy Laith

机构信息

Hepatology, Leeds Teaching Hospitals Trust, Leeds, GBR.

Medical Genetics, University of Cambridge, Cambridge, GBR.

出版信息

Cureus. 2022 Jun 2;14(6):e25609. doi: 10.7759/cureus.25609. eCollection 2022 Jun.

DOI:10.7759/cureus.25609
PMID:35686197
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC9170369/
Abstract

Primary biliary cholangitis (PBC) is a debilitating chronic liver disease that progresses to cirrhosis with attendant complications in a substantial proportion of patients. It is a major cause of liver-related morbidity and mortality in the United Kingdom (UK). The British Society of Gastroenterology (BSG) published guidelines on PBC management, which included key audit standards. Therefore, we propose the first UK-wide audit of the management of PBC, sanctioned by the BSG and the British Association for Study of the Liver (BASL), to benchmark NHS trusts and health boards against these audit standards as a guide to targeted improvement in the delivery of PBC-related health care.

摘要

原发性胆汁性胆管炎(PBC)是一种使人衰弱的慢性肝病,在相当一部分患者中会进展为肝硬化并伴有相关并发症。它是英国肝脏相关发病和死亡的主要原因。英国胃肠病学会(BSG)发布了关于PBC管理的指南,其中包括关键的审核标准。因此,我们提议在英国胃肠病学会(BSG)和英国肝脏研究协会(BASL)的批准下,首次对英国范围内的PBC管理进行审核,以便将国民保健服务信托基金和健康委员会与这些审核标准进行对比,作为有针对性地改善PBC相关医疗服务的指导。