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Towards equitable and trustworthy genomics research.迈向公平可信的基因组学研究
EBioMedicine. 2022 Feb;76:103879. doi: 10.1016/j.ebiom.2022.103879. Epub 2022 Feb 12.
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Strategic vision for improving human health at The Forefront of Genomics.基因组学前沿改善人类健康的战略愿景。
Nature. 2020 Oct;586(7831):683-692. doi: 10.1038/s41586-020-2817-4. Epub 2020 Oct 28.
3
Participant Engagement in Translational Genomics Research: Respect for Persons-and Then Some.参与转化基因组学研究的受试者：尊重个体，不止于此。
Ethics Hum Res. 2019 Sep;41(5):2-15. doi: 10.1002/eahr.500029.
4
Clinical use of current polygenic risk scores may exacerbate health disparities.现行多基因风险评分的临床应用可能会加剧健康差异。
Nat Genet. 2019 Apr;51(4):584-591. doi: 10.1038/s41588-019-0379-x. Epub 2019 Mar 29.
5
"I don't want to be Henrietta Lacks": diverse patient perspectives on donating biospecimens for precision medicine research.“我不想成为海瑞塔·拉克斯”：不同患者对捐赠生物样本进行精准医学研究的看法。
Genet Med. 2019 Jan;21(1):107-113. doi: 10.1038/s41436-018-0032-6. Epub 2018 Jun 11.
6
'It is an entrustment': Broad consent for genomic research and biobanks in sub-Saharan Africa.“这是一项委托”：撒哈拉以南非洲地区对基因组研究和生物样本库的广泛同意。
Dev World Bioeth. 2019 Mar;19(1):9-17. doi: 10.1111/dewb.12178. Epub 2017 Oct 23.
7
Genomics is failing on diversity.基因组学在多样性方面表现不佳。
Nature. 2016 Oct 13;538(7624):161-164. doi: 10.1038/538161a.
8
Community engagement strategies for genomic studies in Africa: a review of the literature.非洲基因组研究的社区参与策略：文献综述
BMC Med Ethics. 2015 Apr 12;16:24. doi: 10.1186/s12910-015-0014-z.
9
Next generation disparities in human genomics: concerns and remedies.下一代人类基因组学中的差异：关注与解决。
Trends Genet. 2009 Nov;25(11):489-94. doi: 10.1016/j.tig.2009.09.012.

Tailored community engagement to address the genetics diversity gap.

作者信息

Hanchard Neil A, Chahrour Maria, de Vries Jantina

机构信息

Childhood Complex Disease Genomics Section, Center for Personalized Health Research, National Human Genome Research Institute, National Institutes of Health, Bethesda, MD, USA.

Eugene McDermott Center for Human Growth and Development, Departments of Neuroscience and Psychiatry, Center for the Genetics of Host Defense, Peter O'Donnell Jr. Brain Institute, University of Texas Southwestern Medical Center, Dallas, TX 75390, USA.

出版信息

Med. 2022 Jun 10;3(6):369-370. doi: 10.1016/j.medj.2022.05.010.

DOI:10.1016/j.medj.2022.05.010
PMID:35690058
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10612127/
Abstract
摘要