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临终意识:一项以色列家庭护理人员对自身和所护理患者临终意识的感知的混合方法研究的结果。

Awareness of Imminent Death: Results From a Mixed Methods Study of Israeli Family Caregivers' Perceptions of Their Awareness and That of the Patients for Whom They Cared.

机构信息

Department of Health Promotion, School of Public Health, Sackler Faculty of Medicine, Tel Aviv University, Tel Aviv, Israel.

Igor Orenstein Chair for the Study of Geriatrics, Tel Aviv University, Tel Aviv, Israel.

出版信息

Omega (Westport). 2024 Nov;90(1):404-419. doi: 10.1177/00302228221107236. Epub 2022 Jun 13.

DOI:10.1177/00302228221107236
PMID:35695555
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11440783/
Abstract

We studied levels of awareness of impending death in older patients and their family caregivers. Using a mixed methods approach, we interviewed 70 family caregivers in Israel. Of the caregivers, 64% reported having been aware of the impending death, 33% were unaware, and 3% uncertain. Caregivers reported their perception that 36% of patients were aware, 27% unaware, and for 37% they were uncertain about the patient's awareness. Mechanisms that increased caregivers' awareness were specific diagnosis, significant deterioration in health, preparation by a health professional, or patient preparations for death. This study clarifies processes which aid awareness, and the relationship between awareness and actual preparation for dying.

摘要

我们研究了老年患者及其家属照顾者对即将死亡的意识水平。采用混合方法,我们在以色列采访了 70 名家庭照顾者。在这些照顾者中,64%的人报告说已经意识到即将死亡,33%的人不知道,3%的人不确定。照顾者报告说,他们认为 36%的患者有意识到,27%的患者没有意识到,而对于 37%的患者,他们不确定患者是否意识到自己的情况。增加照顾者意识的机制包括明确的诊断、健康状况显著恶化、专业医疗人员的准备或患者对死亡的准备。这项研究阐明了有助于意识的过程,以及意识与实际临终准备之间的关系。

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Awareness of Imminent Death: Results From a Mixed Methods Study of Israeli Family Caregivers' Perceptions of Their Awareness and That of the Patients for Whom They Cared.临终意识:一项以色列家庭护理人员对自身和所护理患者临终意识的感知的混合方法研究的结果。
Omega (Westport). 2024 Nov;90(1):404-419. doi: 10.1177/00302228221107236. Epub 2022 Jun 13.
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本文引用的文献

1
Association between prognostic awareness and quality of life in patients with advanced cancer.晚期癌症患者预后意识与生活质量的关系。
Qual Life Res. 2022 Aug;31(8):2367-2374. doi: 10.1007/s11136-022-03097-z. Epub 2022 Feb 4.
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Caregivers' Death-Preparedness States Impact Caregiving Outcomes and Patients' End-of-Life Care.照顾者的死亡准备状态影响照顾者的结局和患者的临终关怀。
J Pain Symptom Manage. 2022 Feb;63(2):199-209. doi: 10.1016/j.jpainsymman.2021.09.012. Epub 2021 Sep 24.
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Family Caregivers' Emotional Preparedness for Death is Distinct from Their Cognitive Prognostic Awareness for Cancer Patients.家庭护理人员对癌症患者死亡的情绪准备与他们对癌症患者的认知预后意识不同。
J Palliat Med. 2021 Mar;24(3):405-412. doi: 10.1089/jpm.2020.0264. Epub 2020 Aug 13.
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Regrets of family caregivers in Israel about the end of life of deceased relatives.以色列家属照顾者对已故亲属生命终末期的遗憾。
Aging Ment Health. 2021 Apr;25(4):720-727. doi: 10.1080/13607863.2019.1709154. Epub 2020 Jan 8.
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What Is the End of Life Period? Trajectories and Characterization Based on Primary Caregiver Reports.生命终末期是什么?基于主要照顾者报告的轨迹和特征。
J Gerontol A Biol Sci Med Sci. 2018 Apr 17;73(5):695-701. doi: 10.1093/gerona/glx195.
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Treatment and Communication-That Is What Matters: An Analysis of Complaints Regarding End-of-Life Care.治疗与沟通——这才是关键:对临终关怀投诉的分析
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End-of-life expectations and experiences among nursing home patients and their relatives--a synthesis of qualitative studies.养老院患者及其亲属对临终的期望与体验——定性研究综述
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Awareness of dying: it needs words.临终意识:需要语言。
Support Care Cancer. 2012 Jun;20(6):1227-33. doi: 10.1007/s00520-011-1208-7. Epub 2011 Jun 19.
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Concordance of family and staff member reports about end of life in assisted living and nursing homes.辅助生活和护理之家临终报告中家庭和工作人员报告的一致性。
Gerontologist. 2010 Feb;50(1):112-20. doi: 10.1093/geront/gnp089. Epub 2009 Jun 23.
10
Associations between end-of-life discussions, patient mental health, medical care near death, and caregiver bereavement adjustment.临终讨论、患者心理健康、临终医疗护理与照顾者丧亲之痛调适之间的关联。
JAMA. 2008 Oct 8;300(14):1665-73. doi: 10.1001/jama.300.14.1665.