Suppr超能文献

临终意识:一项以色列家庭护理人员对自身和所护理患者临终意识的感知的混合方法研究的结果。

Awareness of Imminent Death: Results From a Mixed Methods Study of Israeli Family Caregivers' Perceptions of Their Awareness and That of the Patients for Whom They Cared.

机构信息

Department of Health Promotion, School of Public Health, Sackler Faculty of Medicine, Tel Aviv University, Tel Aviv, Israel.

Igor Orenstein Chair for the Study of Geriatrics, Tel Aviv University, Tel Aviv, Israel.

出版信息

Omega (Westport). 2024 Nov;90(1):404-419. doi: 10.1177/00302228221107236. Epub 2022 Jun 13.

Abstract

We studied levels of awareness of impending death in older patients and their family caregivers. Using a mixed methods approach, we interviewed 70 family caregivers in Israel. Of the caregivers, 64% reported having been aware of the impending death, 33% were unaware, and 3% uncertain. Caregivers reported their perception that 36% of patients were aware, 27% unaware, and for 37% they were uncertain about the patient's awareness. Mechanisms that increased caregivers' awareness were specific diagnosis, significant deterioration in health, preparation by a health professional, or patient preparations for death. This study clarifies processes which aid awareness, and the relationship between awareness and actual preparation for dying.

摘要

我们研究了老年患者及其家属照顾者对即将死亡的意识水平。采用混合方法,我们在以色列采访了 70 名家庭照顾者。在这些照顾者中,64%的人报告说已经意识到即将死亡,33%的人不知道,3%的人不确定。照顾者报告说,他们认为 36%的患者有意识到,27%的患者没有意识到,而对于 37%的患者,他们不确定患者是否意识到自己的情况。增加照顾者意识的机制包括明确的诊断、健康状况显著恶化、专业医疗人员的准备或患者对死亡的准备。这项研究阐明了有助于意识的过程,以及意识与实际临终准备之间的关系。

相似文献

3
The relationship between caregivers' perceptions of end-of-life care in long-term care and a good resident death.
Palliat Support Care. 2020 Dec;18(6):683-690. doi: 10.1017/S1478951520000292.
4
Awareness of dying: it needs words.
Support Care Cancer. 2012 Jun;20(6):1227-33. doi: 10.1007/s00520-011-1208-7. Epub 2011 Jun 19.
5
Changes in prognostic awareness among seriously ill older persons and their caregivers.
J Palliat Med. 2006 Feb;9(1):61-9. doi: 10.1089/jpm.2006.9.61.
6
Families' awareness of and response to dying.
Oncol Nurs Forum. 1999 Jan-Feb;26(1):113-20.
8
Death attitudes and truth disclosure: A survey of family caregivers of elders with terminal cancer in China.
Nurs Ethics. 2019 Nov-Dec;26(7-8):1968-1975. doi: 10.1177/0969733018809805. Epub 2018 Nov 14.
9
End-of-life experiences of family caregivers of deceased patients with cancer: A nation-wide survey.
Psychooncology. 2018 Jan;27(1):272-278. doi: 10.1002/pon.4504. Epub 2017 Aug 15.

本文引用的文献

1
Association between prognostic awareness and quality of life in patients with advanced cancer.
Qual Life Res. 2022 Aug;31(8):2367-2374. doi: 10.1007/s11136-022-03097-z. Epub 2022 Feb 4.
2
Caregivers' Death-Preparedness States Impact Caregiving Outcomes and Patients' End-of-Life Care.
J Pain Symptom Manage. 2022 Feb;63(2):199-209. doi: 10.1016/j.jpainsymman.2021.09.012. Epub 2021 Sep 24.
3
Family Caregivers' Emotional Preparedness for Death is Distinct from Their Cognitive Prognostic Awareness for Cancer Patients.
J Palliat Med. 2021 Mar;24(3):405-412. doi: 10.1089/jpm.2020.0264. Epub 2020 Aug 13.
4
Regrets of family caregivers in Israel about the end of life of deceased relatives.
Aging Ment Health. 2021 Apr;25(4):720-727. doi: 10.1080/13607863.2019.1709154. Epub 2020 Jan 8.
5
What Is the End of Life Period? Trajectories and Characterization Based on Primary Caregiver Reports.
J Gerontol A Biol Sci Med Sci. 2018 Apr 17;73(5):695-701. doi: 10.1093/gerona/glx195.
6
Treatment and Communication-That Is What Matters: An Analysis of Complaints Regarding End-of-Life Care.
J Palliat Med. 2017 Dec;20(12):1359-1365. doi: 10.1089/jpm.2017.0002. Epub 2017 Jun 15.
7
End-of-life expectations and experiences among nursing home patients and their relatives--a synthesis of qualitative studies.
Patient Educ Couns. 2014 Oct;97(1):3-9. doi: 10.1016/j.pec.2014.05.025. Epub 2014 Jun 12.
8
Awareness of dying: it needs words.
Support Care Cancer. 2012 Jun;20(6):1227-33. doi: 10.1007/s00520-011-1208-7. Epub 2011 Jun 19.
9
Concordance of family and staff member reports about end of life in assisted living and nursing homes.
Gerontologist. 2010 Feb;50(1):112-20. doi: 10.1093/geront/gnp089. Epub 2009 Jun 23.

文献AI研究员

20分钟写一篇综述,助力文献阅读效率提升50倍。

立即体验

用中文搜PubMed

大模型驱动的PubMed中文搜索引擎

马上搜索

文档翻译

学术文献翻译模型,支持多种主流文档格式。

立即体验