Cohen-Mansfield Jiska, Skornick-Bouchbinder Michal, Cohen Rinat, Brill Shai
1 Minerva Center for the Interdisciplinary Study of End of Life, Tel-Aviv University , Tel Aviv, Israel .
2 The Herczeg Institute on Aging, Tel-Aviv University , Tel Aviv, Israel .
J Palliat Med. 2017 Dec;20(12):1359-1365. doi: 10.1089/jpm.2017.0002. Epub 2017 Jun 15.
Investigating complaints concerning end-of-life (EoL) care is a necessary step for improving the quality of life at its final stage.
We aimed to classify and quantify the aspects of EoL care that require improvement by analyzing caregivers' feedback on the care their relatives received before death.
A survey of primary family caregivers of deceased patients.
SETTING/SUBJECTS: Relatives of decedents were recruited through two geriatric medical centers and from persons contacted for other studies, who reported losing a relative. Face-to-face interviews of 70 relatives of the deceased were conducted. The participants' mean age was 64, 68.6% were female, and most (57%) were born in Israel. Regarding relationship to the deceased, 74.3% were sons/daughters, 24.3% were spouses, and one (1.4%) was a cousin.
Responses to the question "Is there something in the health system or the behavior of the doctors/nurses that you would recommend changing?" were analyzed qualitatively.
82.9% of participants had complaints about the care received. Within this, 62.9% related to provision of services, 51.4% to communication, 27.1% to system issues, 15.7% to institutional issues, and 10.0% to staffing issues. Qualitative analysis revealed potential causal relationships between these EoL issues. We therefore propose a theoretical model involving the distal factors of system, institution, and staff that impact the proximal factors of provision of services and communication.
The new model has the potential to clarify directions in research, quality assessment, and intervention regarding end-of-life care.
调查关于临终关怀的投诉是提高临终阶段生活质量的必要步骤。
我们旨在通过分析护理人员对其亲属临终前接受的护理的反馈，对需要改进的临终关怀方面进行分类和量化。
对已故患者的主要家庭护理人员进行调查。
地点/对象：通过两家老年医学中心以及因其他研究而联系的报告失去亲属的人员招募死者亲属。对70名死者亲属进行了面对面访谈。参与者的平均年龄为64岁，68.6%为女性，大多数（57%）出生在以色列。关于与死者的关系，74.3%是儿子/女儿，24.3%是配偶，1人（1.4%）是表亲。
对“卫生系统或医生/护士的行为中是否有你建议改变的地方？”这一问题的回答进行定性分析。
82.9%的参与者对所接受的护理有投诉。其中，62.9%与服务提供有关，5
