• 文献检索
  • 文档翻译
  • 深度研究
  • 学术资讯
  • Suppr Zotero 插件Zotero 插件
  • 邀请有礼
  • 套餐&价格
  • 历史记录
应用&插件
Suppr Zotero 插件Zotero 插件浏览器插件Mac 客户端Windows 客户端微信小程序
定价
高级版会员购买积分包购买API积分包
服务
文献检索文档翻译深度研究API 文档MCP 服务
关于我们
关于 Suppr公司介绍联系我们用户协议隐私条款
关注我们

Suppr 超能文献

核心技术专利:CN118964589B侵权必究
粤ICP备2023148730 号-1Suppr @ 2026

文献检索

告别复杂PubMed语法,用中文像聊天一样搜索,搜遍4000万医学文献。AI智能推荐,让科研检索更轻松。

立即免费搜索

文件翻译

保留排版,准确专业,支持PDF/Word/PPT等文件格式,支持 12+语言互译。

免费翻译文档

深度研究

AI帮你快速写综述,25分钟生成高质量综述,智能提取关键信息,辅助科研写作。

立即免费体验

面向创伤性脑损伤和/或脊髓损伤儿童的以家庭为中心的护理:COVID-19 大流行期间服务提供者观点的定性研究。

Family-centred care for children with traumatic brain injury and/or spinal cord injury: a qualitative study of service provider perspectives during the COVID-19 pandemic.

机构信息

Clinical Sciences, Murdoch Children's Research Institute, Parkville, Victoria, Australia.

Department of Occupational Therapy, La Trobe University, Melbourne, Victoria, Australia.

出版信息

BMJ Open. 2022 Jun 13;12(6):e059534. doi: 10.1136/bmjopen-2021-059534.

DOI:10.1136/bmjopen-2021-059534
PMID:35697462
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC9195152/
Abstract

OBJECTIVES

COVID-19 has led to rapid changes in rehabilitation service provision for young people living with traumatic brain and/or spinal cord injury. The aim of this project was to understand the experiences of rehabilitation service providers during the acute response stage of the COVID-19 pandemic. Specifically, we aimed to identify innovative approaches to meeting the ongoing needs of young people with traumatic brain and/or spinal cord injury during this time.

SETTING

This study was conducted at a research institute and involved remote interviews with key informants around Australia and internationally.

PARTICIPANTS

Key informants from 11 services supporting children and/or adolescents with traumatic brain injury and/or spinal cord injury were interviewed using a semistructured interview guide. Interviews were transcribed and analysed using inductive thematic analysis.

RESULTS

Three key themes emerged: (1) recognising and responding to the experiences of families during the pandemic, (2) the impact of greater use of telehealth on care delivery, and (3) realising opportunities to enhance family-centred care.

CONCLUSIONS

These themes capture shifting perspectives and process changes relevant to longer term practice. Research findings suggest opportunities for future service development, enabling service delivery that is more family centred, flexible and efficient in meeting the needs of families. Understanding these experiences and the changed nature of service delivery provides important insights with implications for future service improvement.

摘要

目的

新冠疫情导致为患有颅脑和/或脊髓损伤的年轻人提供康复服务迅速发生变化。本项目旨在了解康复服务提供者在新冠疫情急性反应阶段的经历。具体而言,我们旨在确定在此期间满足颅脑和/或脊髓损伤年轻人持续需求的创新方法。

地点

本研究在一家研究所进行,涉及对澳大利亚和国际上的 11 个服务机构的主要信息提供者进行远程访谈。

参与者

使用半结构化访谈指南对支持颅脑损伤和/或脊髓损伤儿童和/或青少年的 11 个服务机构的 11 名主要信息提供者进行了访谈。对访谈进行了转录和归纳主题分析。

结果

出现了三个主要主题:(1)认识和应对大流行期间家庭的经历,(2)更多使用远程医疗对护理提供的影响,以及(3)实现增强以家庭为中心的护理的机会。

结论

这些主题反映了与长期实践相关的不断变化的观点和流程变化。研究结果表明了未来服务发展的机会,使服务更以家庭为中心、灵活和高效,以满足家庭的需求。了解这些经历和服务提供性质的变化为未来的服务改进提供了重要的见解。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/9538/9195152/855d4c14dd59/bmjopen-2021-059534f01.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/9538/9195152/855d4c14dd59/bmjopen-2021-059534f01.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/9538/9195152/855d4c14dd59/bmjopen-2021-059534f01.jpg

相似文献

1
Family-centred care for children with traumatic brain injury and/or spinal cord injury: a qualitative study of service provider perspectives during the COVID-19 pandemic.面向创伤性脑损伤和/或脊髓损伤儿童的以家庭为中心的护理:COVID-19 大流行期间服务提供者观点的定性研究。
BMJ Open. 2022 Jun 13;12(6):e059534. doi: 10.1136/bmjopen-2021-059534.
2
Rehabilitation models of care for children and youth living with traumatic brain and/or spinal cord injuries: A focus on family-centred care, psychosocial wellbeing, and transitions.针对患有创伤性脑损伤和/或脊髓损伤的儿童和青少年的康复护理模式:关注以家庭为中心的护理、心理社会福祉和过渡。
Neuropsychol Rehabil. 2022 May;32(4):537-559. doi: 10.1080/09602011.2020.1833945. Epub 2020 Oct 27.
3
Rehabilitation models of care for children and youth with traumatic brain and/or spinal cord injuries: A focus on service structure, service organization, and the barriers and facilitators of rehabilitation service provision.创伤性脑和/或脊髓损伤儿童和青少年的康复护理模式:重点关注服务结构、服务组织以及康复服务提供的障碍和促进因素。
Neuropsychol Rehabil. 2023 Dec;33(10):1697-1727. doi: 10.1080/09602011.2022.2147196. Epub 2022 Nov 24.
4
Family-centred service in paediatric acquired brain injury rehabilitation: perspectives of children and adolescents and their families.儿科获得性脑损伤康复中的以家庭为中心的服务:儿童和青少年及其家庭的观点。
Disabil Rehabil. 2023 Sep;45(19):3087-3098. doi: 10.1080/09638288.2022.2121864. Epub 2022 Sep 15.
5
The experiences of social and community participation of people with non-traumatic spinal cord injury.非创伤性脊髓损伤患者的社会和社区参与经历。
Aust Occup Ther J. 2019 Feb;66(1):61-67. doi: 10.1111/1440-1630.12522. Epub 2018 Aug 29.
6
Stakeholder Perspectives on the School Experiences of Students With Traumatic Brain Injury: The Effects of COVID-19 Pandemic on Service Delivery.利益相关者对创伤性脑损伤学生学校经历的看法:新冠疫情对服务提供的影响。
J Sch Health. 2023 May;93(5):378-385. doi: 10.1111/josh.13280. Epub 2022 Nov 16.
7
Access to health and support services: perspectives of people living with a long-term traumatic spinal cord injury in rural and urban areas.获得健康与支持服务:城乡地区长期创伤性脊髓损伤患者的观点
Disabil Rehabil. 2015;37(16):1401-10. doi: 10.3109/09638288.2014.972593. Epub 2014 Oct 21.
8
Adapting Family Planning Service Delivery in Title X and School-Based Settings during COVID-19: Provider and Staff Experiences.适应 COVID-19 期间的 Title X 和学校计划生育服务提供:提供者和工作人员的经验。
Int J Environ Res Public Health. 2023 Feb 17;20(4):3592. doi: 10.3390/ijerph20043592.
9
The Shadow Pandemic: A Qualitative Exploration of the Impacts of COVID-19 on Service Providers and Women Survivors of Intimate Partner Violence and Brain Injury.“影子疫情”:COVID-19 对亲密伴侣暴力和脑损伤女性幸存者和服务提供者的影响的定性探索。
J Head Trauma Rehabil. 2022;37(1):43-52. doi: 10.1097/HTR.0000000000000751.
10
Perspectives from the spinal cord injury community with teleSCI services during the COVID-19 pandemic: a qualitative study.脊髓损伤社区对 COVID-19 大流行期间远程脊髓损伤服务的看法:一项定性研究。
Disabil Rehabil Assist Technol. 2024 Feb;19(2):446-453. doi: 10.1080/17483107.2022.2096932. Epub 2022 Jul 7.

引用本文的文献

1
'They could not see our eyes, they cannot see our faces, they do not know who we are and that is hard': a qualitative interview study with staff caring for children and families in a UK specialist children's hospital during the COVID-19 pandemic.“他们看不见我们的眼睛,他们看不见我们的脸,他们不知道我们是谁,这很难”:在 COVID-19 大流行期间,对英国一家专门儿童医院照顾儿童和家庭的工作人员进行的定性访谈研究。
BMJ Open. 2023 Jun 14;13(6):e070048. doi: 10.1136/bmjopen-2022-070048.

本文引用的文献

1
A Paradigm Shift in the Delivery of Physical Therapy Services for Children With Disabilities in the Time of the COVID-19 Pandemic.新冠疫情时期为残疾儿童提供物理治疗服务的范式转变。
Phys Ther. 2021 Jan 4;101(1). doi: 10.1093/ptj/pzaa192.
2
An overview of current mental health in the general population of Australia during the COVID-19 pandemic: Results from the COLLATE project.澳大利亚 COVID-19 大流行期间普通人群心理健康状况概述:COLLATE 项目的研究结果。
Psychiatry Res. 2021 Feb;296:113660. doi: 10.1016/j.psychres.2020.113660. Epub 2020 Dec 26.
3
Let's not go back to 'normal'! lessons from COVID-19 for professionals working in childhood disability.
让我们不要回归“正常”!新冠疫情给从事儿童残疾工作的专业人员带来的教训。
Disabil Rehabil. 2021 Apr;43(7):1022-1028. doi: 10.1080/09638288.2020.1862925. Epub 2020 Dec 23.
4
Rehabilitation services lockdown during the COVID-19 emergency: the mental health response of caregivers of children with neurodevelopmental disabilities.康复服务在 COVID-19 紧急情况下的封锁:儿童神经发育障碍照顾者的心理健康反应。
Disabil Rehabil. 2021 Jan;43(1):27-32. doi: 10.1080/09638288.2020.1842520. Epub 2020 Nov 10.
5
How the COVID-19 pandemic has changed our lives: A study of psychological correlates across 59 countries.**新冠疫情如何改变了我们的生活:对 59 个国家心理相关因素的研究**
J Clin Psychol. 2021 Mar;77(3):556-570. doi: 10.1002/jclp.23082. Epub 2020 Oct 31.
6
Rehabilitation models of care for children and youth living with traumatic brain and/or spinal cord injuries: A focus on family-centred care, psychosocial wellbeing, and transitions.针对患有创伤性脑损伤和/或脊髓损伤的儿童和青少年的康复护理模式:关注以家庭为中心的护理、心理社会福祉和过渡。
Neuropsychol Rehabil. 2022 May;32(4):537-559. doi: 10.1080/09602011.2020.1833945. Epub 2020 Oct 27.
7
Pediatric Teleheath: Opportunities Created by the COVID-19 and Suggestions to Sustain Its Use to Support Families of Children with Disabilities.儿科远程医疗:COVID-19 带来的机遇及为支持残疾儿童家庭而持续使用的建议。
Phys Occup Ther Pediatr. 2021;41(1):1-17. doi: 10.1080/01942638.2020.1825032. Epub 2020 Oct 6.
8
Alone With the Kids: Tele-Medicine for Children With Special Healthcare Needs During COVID-19 Emergency.与孩子独处:COVID-19疫情期间为有特殊医疗需求的儿童提供的远程医疗服务
Front Psychol. 2020 Sep 9;11:2193. doi: 10.3389/fpsyg.2020.02193. eCollection 2020.
9
The probability of the 6-week lockdown in Victoria (commencing 9 July 2020) achieving elimination of community transmission of SARS-CoV-2.维多利亚州为期6周的封锁措施(于2020年7月9日开始)实现消除SARS-CoV-2社区传播的概率。
Med J Aust. 2020 Oct;213(8):349-351.e1. doi: 10.5694/mja2.50786. Epub 2020 Sep 27.
10
COVID-19 pandemic: The impact on vulnerable children and young people in Australia.COVID-19 大流行:对澳大利亚弱势儿童和青年的影响。
J Paediatr Child Health. 2020 Dec;56(12):1851-1855. doi: 10.1111/jpc.15169. Epub 2020 Sep 15.