Pekkola Maria, Tikkanen Minna, Loukovaara Mikko, Paavonen Jorma, Stefanovic Vedran
Department of Obstetrics and Gynecology, University of Helsinki and Helsinki University Hospital, Helsinki, Finland.
J Perinat Med. 2022 Jun 14;50(6):844-853. doi: 10.1515/jpm-2022-0246. Print 2022 Jul 26.
This study aimed to assess parents' satisfaction with received care and support when experiencing stillbirth.
This was a questionnaire survey conducted at Helsinki University Hospital, Helsinki, Finland during 2016-2020. Separate questionnaires were sent to mothers and partners who had experienced an antepartum singleton stillbirth at or after 22 gestational weeks during 2016-2019. The questionnaire covered five major topics: stillbirth diagnosis, delivery, information on postmortem examinations, aftercare at the ward, and follow-up appointment.
One hundred nineteen letters were sent and 57 (47.9%) of the mothers and 46 (38.7%) of their partners responded. Both mothers and their partners felt well supported during delivery. They were also satisfied with the time holding their newborn. Partners reported even higher satisfaction in this aspect with a significant within-dyad difference (p=0.049). Parents were generally pleased with the support at the ward. However, both groups were less satisfied with social worker counseling (mothers 53.7%, partners 61.0%). The majority felt that the follow-up visit was helpful. Nonetheless, a remarkable proportion felt that the follow-up visit increased their anxiousness (25.9%, 14.0%, p=0.018). Partners rated their mood higher than mothers (p=0.001). Open feedback revealed that the support received after discharge from hospital was often insufficient.
Our study showed that the parents who experience stillbirth in our institution receive mostly adequate care and support during their hospital stay. However, there is room for further training of healthcare professionals and other professionals contributing in stillbirth aftercare.
本研究旨在评估父母在经历死胎时对所接受护理和支持的满意度。
这是一项于2016年至2020年期间在芬兰赫尔辛基大学医院进行的问卷调查。分别向在2016年至2019年期间妊娠22周及以后经历单胎产前死胎的母亲及其伴侣发放问卷。问卷涵盖五个主要主题：死胎诊断、分娩、尸检信息、病房后续护理以及随访预约。
共发出119封信，57位母亲（47.9%）及其46位伴侣（38.7%）回复。母亲及其伴侣在分娩期间都感到得到了很好的支持。他们对抱新生儿的时间也很满意。伴侣在这方面的满意度更高，二元组内差异显著（p = 0.049）。父母总体上对病房的支持感到满意。然而，两组对社会工作者的咨询满意度较低（母亲为53.7%，伴侣为61.0%）。大多数人认为随访就诊有帮助。尽管如此，相当一部分人认为随访就诊增加了他们的焦虑（分别为25.9%、14.0%，p = 0.018）。伴侣对自己情绪的评分高于母亲（p = 0.001）。开放式反馈显示，出院后得到的支持往往不足。
我们的研究表明，在我们机构经历死胎的父母在住院期间大多得到了充分的护理和支持。然而，在对参与死胎后续护理的医疗保健专业人员和其他专业人员进行进一步培训方面仍有空间。
