Knowledge Centre for Neurorehabilitation of Western Denmark, Roskilde, Denmark.
Spinal Cord Injury Centre of Western Denmark, Neurology, Central Regional Hospital, Viborg, Denmark.
PLoS One. 2022 Jun 16;17(6):e0269125. doi: 10.1371/journal.pone.0269125. eCollection 2022.
This scoping review explores the constitution of a meaningful life as perceived by adults with acquired neurological impairment following an injury or a disease.
A neurological injury or disease imposes extensive life changes on the affected person and his or her close relatives. Including the patients' perception of a meaningful life is crucial to facilitate adjustment of any rehabilitation initiatives to the patients' wishes, hopes, needs, and preferences. Even so, the descriptions and common traits of a meaningful life from the impaired person's perspective are scarcely covered in the literature. Hence, a scoping review of existing knowledge is needed to facilitate quality rehabilitation and research initiatives.
All studies, regardless of their design, are included provided they describe a meaningful life as considered or experienced by persons aged 18 years or more with neurological impairment.
A PICo framework defines the search algorithms used in the databases MEDLINE, Cinahl, PsycINFO and Embase. Using Covidence, the scoping review systematically organizes the identified articles to provide a broad description of the study phenomenon. Furthermore, titles, abstracts, and full-text articles are screened independently by two reviewers to determine if they meet the inclusion criteria. In case of disagreement, a third and fourth reviewer are consulted. The scoping will be reported according to the PRISMA- SCR checklist.
本范围综述探讨了成人在因损伤或疾病而导致的获得性神经损伤后对有意义生活的理解。
神经损伤或疾病会给受影响者及其直系亲属的生活带来广泛的变化。将患者对有意义生活的感知纳入其中对于促进任何康复措施的调整以满足患者的愿望、希望、需求和偏好至关重要。即便如此，从受损者的角度描述和概括有意义生活的特征在文献中仍鲜有涉及。因此，需要对现有知识进行范围综述，以促进高质量的康复和研究举措。
无论设计如何，只要描述了年龄在 18 岁或以上的神经损伤患者所认为或体验到的有意义的生活，所有研究均被纳入。
PICo 框架定义了在 MEDLINE、Cinahl、PsycINFO 和 Embase 数据库中使用的搜索算法。使用 Covidence，范围综述系统地组织了已识别的文章，以提供对研究现象的广泛描述。此外，标题、摘要和全文文章由两名评审员独立筛选，以确定它们是否符合纳入标准。如果存在分歧，将咨询第三和第四位评审员。本综述将根据 PRISMA-SCR 清单进行报告。
